Hi, my name is Bill and I have finally decided to come out of my shell from when I was first diagnosed with RRMS in 2011. I have kept things a complete secret because of the fear of the stigma associated with the diagnosis. I had a very competitive job, and my coworkers would have eaten me alive if they knew.
MS wasn't new to me, however. I am a physical therapist and I used to work on an MS unit at a rehab hospital for a number of years and then in their homes. When I received my diagnosis I had the advantage of knowing a lot and also the disadvantage of knowing a lot. I developed a game with my neurologist to see if I could guess which part of the brain had the lesion before we looked at the MRI.
Recently my job came to an end. I decided to just tell everyone. I am not sure what people think of this but I am going to open my own therapy practice with a focus on patients with MS. I wonder what people on here would think of receiving care from a provider with MS?
My greatest fear is not being available to my two daughters and wife as this disease progresses. To try to manage that stress I started a blog about random advice I am writing for my young daughters now for them to review later as adults. I want them to know their dad before the disease progresses (with a high degree of optimism that the medications we have now will slow this disease down to a crawl). Note that some of the topics are random and ridiculous- just like their dad.
Thanks for reading and nice to meet everyone.
Bill
MS wasn't new to me, however. I am a physical therapist and I used to work on an MS unit at a rehab hospital for a number of years and then in their homes. When I received my diagnosis I had the advantage of knowing a lot and also the disadvantage of knowing a lot. I developed a game with my neurologist to see if I could guess which part of the brain had the lesion before we looked at the MRI.
Recently my job came to an end. I decided to just tell everyone. I am not sure what people think of this but I am going to open my own therapy practice with a focus on patients with MS. I wonder what people on here would think of receiving care from a provider with MS?
My greatest fear is not being available to my two daughters and wife as this disease progresses. To try to manage that stress I started a blog about random advice I am writing for my young daughters now for them to review later as adults. I want them to know their dad before the disease progresses (with a high degree of optimism that the medications we have now will slow this disease down to a crawl). Note that some of the topics are random and ridiculous- just like their dad.
Thanks for reading and nice to meet everyone.
Bill
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