What's the latest about getting the vaccine? I've read conflicting opinions about this. Thanks.
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Shingles vaccine
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Normally, MS patients are cautioned not to take live virus vaccinations for fear of activating our immune system. There are now two shingles vaccines: the zostavax (live virus) and the shingrix (dead virus).
From the NMSS
Shingles vaccine (Shingrix®)- The CDC recommends Shingrix, a non-live vaccine for the prevention of herpes zoster (shingles) and related complications. The vaccine, which is given in two doses separated by 2 to 6 months, is recommended over Zostavax® (the previously approved vaccine for shingles). Shingrix is approved for adults 50 years and older:
- whether or not they have had a prior episode of herpes zoster or have had a dose of Zostavax
- who have a chronic medical condition, unless there is a specific reason why the individual should not have it
- who are getting other adult vaccines such as influenza and pneumococcal (pneumonia) vaccines
- No studies of Shingrix have been done in people with MS. However, in two clinical studies with Shingrix, there was no increase in immune-mediated conditions.
- The CDC indicates that a person who is taking a low-dose immunosuppressive therapy or is going to begin taking an immunosuppressive medication can take Shingrix. It is very important to discuss this vaccine with the healthcare provider who is treating your MS to ensure that it is appropriate for you.
https://www.nationalmssociety.org/Li...s/Vaccinations
- The CDC recommends Shingrix, a non-live vaccine for the prevention of herpes zoster (shingles) and related complications. The vaccine, which is given in two doses separated by 2 to 6 months, is recommended over Zostavax® (the previously approved vaccine for shingles). Shingrix is approved for adults 50 years and older:
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I am on Tysabri, and I had both shots last year. Each shot was $160 (on traditional Medicare...heard it is more if you are younger) and is separated by 2-6 months. I made sure to have each dose midway between infusions. I had no problems, but my “shot” arm was sore for 48 hours (choose your non-dominant arm). I had shingles 45 years ago and have NO desire to repeat the experience.
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Originally posted by MMMMS View PostI had the shot many years ago. Are they suggesting that we get the new version? I'm asking, because it says the new version is recommended whether or not you've had the live version before. Or are we supposed to get a booster every so often.
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Shingrix Vaccine
My neurologist has recommended that I get the Shingrix vaccine. My primary care physician has arranged for me to receive dose #1 on Monday March 25th. He has a waiting list and it took me about 10 says before he called and said the vaccine had come in. The requests for this vaccine are so great that the manufacturer has a hard time keeping up with the demand. Wish me luck.
IRENE
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I got dose no. 2 yesterday. After dose 1, I felt like garbage and basically lost a day. So far with dose 2 it is just a mildly sore arm and not the nausea, headache, achey. It was tricky getting it between Ocrevus doses because of the shortage. You need to have your local pharmacist on your team, so to speak.
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Originally posted by Temagami View PostI got dose no. 2 yesterday. After dose 1, I felt like garbage and basically lost a day. So far with dose 2 it is just a mildly sore arm and not the nausea, headache, achey. It was tricky getting it between Ocrevus doses because of the shortage. You need to have your local pharmacist on your team, so to speak.
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