I have a new neuro (as my only one and long-time doctor retired last year) and he suggests that Ocrevus is a better treatment and I may want to switch from Avonex? I'm not sure what I'll do? If it's not broken, don't fix it; don't rock the boat, don't make waves; etc. Am I being "stubborn" or just too comfortable with "status quo" although I know MS is a progressive disease, etc.
Background: MS dx 1994; started Avonex September 1997 (after lesion on thalamus caused vision disturbance). Follow up MRI showed substatial "silent progression" in the last three years (from age 25-28). Been on Avonex 21 years and I consider it my long-time companion. Despite being true needle weenie, I've "stuck with it" pun intended.
Am I just being stubborn? Is it the complacency of comfort? My MRI's have been stable and I have had minimal progression. Sure 25 years after dx, my fatigue and cognitive issues nudged me onto SSDI in my mid-40's, but I know "how lucky" I am as my MRI shows lots of damage and black holes but "I look so good." Should I switch to a more aggressive tx now? Simply looking for feedback from my fellow MSers.
Thanks, in advance, for your input!
Background: MS dx 1994; started Avonex September 1997 (after lesion on thalamus caused vision disturbance). Follow up MRI showed substatial "silent progression" in the last three years (from age 25-28). Been on Avonex 21 years and I consider it my long-time companion. Despite being true needle weenie, I've "stuck with it" pun intended.
Am I just being stubborn? Is it the complacency of comfort? My MRI's have been stable and I have had minimal progression. Sure 25 years after dx, my fatigue and cognitive issues nudged me onto SSDI in my mid-40's, but I know "how lucky" I am as my MRI shows lots of damage and black holes but "I look so good." Should I switch to a more aggressive tx now? Simply looking for feedback from my fellow MSers.
Thanks, in advance, for your input!
Comment