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In the process of getting diagnosed

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    In the process of getting diagnosed

    Hi everyone,
    I have been in chronic pain for five years now. I started falling about four years ago. That is when the fun started. I began seeing all kinds of specialists and found out so much. My back was destroyed and surgery was not an option. I also found out that my heart was messed up.

    Then I get told that I have fibromyalgia.
    But now I am losing the ability to use my legs. I am falling more often. I have drop foot, and so many other symptoms of ms. My primary said how could we have missed it. She immediately prescribed a walker and referred me to a new neurologist.
    He is scheduling EMG (Upper and lower) before I get the spinal tap. My insurance company is giving us the run around.

    Also when I told my best friend about this diagnosis, she actually googled it and was putting me through the 20 questions.. Who would lie about this ?
    I feel like everyone is calling me a liar. Why would I lie?

    #2
    Originally posted by Wsr1966 View Post
    Hi everyone,
    I have been in chronic pain for five years now. I started falling about four years ago. That is when the fun started. I began seeing all kinds of specialists and found out so much. My back was destroyed and surgery was not an option. I also found out that my heart was messed up.

    Then I get told that I have fibromyalgia.
    But now I am losing the ability to use my legs. I am falling more often. I have drop foot, and so many other symptoms of ms. My primary said how could we have missed it. She immediately prescribed a walker and referred me to a new neurologist.
    He is scheduling EMG (Upper and lower) before I get the spinal tap. My insurance company is giving us the run around.

    Also when I told my best friend about this diagnosis, she actually googled it and was putting me through the 20 questions.. Who would lie about this ?
    I feel like everyone is calling me a liar. Why would I lie?
    Hi wsr1966

    Welcome to our message boards.

    I'm sorry to learn that you have been going through so many health issues for the past five years - chronic pain, back problems, heart issues, fibromyalgia, and now possibly MS.

    I don't know why your best friend and others seem to doubt your health issues.

    They should be thanking their lucky stars that they don't have to deal with these problems.

    It has to be very difficult to deal with all of this, and then to not have good support from others.

    Hopefully your insurance company issues get straightened out soon.

    Good luck with your upcoming tests, and your neuro appointment.

    Please let us know what you find out.

    Feel free to come here and share how you are doing, ask questions, and vent if you need to!

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      Hi Wsr1966 and welcome to MSWorld.

      There is testing that can help in a diagnosis of Multiple Sclerosis; MRI of brain and spine, EEG, Lumbar Puncture(spinal tap). The EMG is to help in the diagnosis of other conditions. There is no symptom exclusive to Multiple Sclerosis.

      My back was destroyed and surgery was not an option.
      Mechanical back problems is one of those things that can cause Neurological symptoms and could be the cause for your symptoms. Losing your ability to walk, falling and foot drop can all be due to back problems. Have you discussed your back problems with a Neurosurgeon? I'm not sure why surgery is not an option, if your symptoms are due to your back it can get worse

      Hope you find some relief for your symptoms.
      Diagnosed 1984
      “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

      Comment


        #4
        Welcome to MS World. Being in limbo for so long is difficult. I hope you get dx soon.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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