Hi all,
Due to holiday schedules and insurance rollover in New year, my Ty has been pushed out one extra week. I am really feeling it. I am sure the Holiday rush is exaggerating it this month as well.
But it started me thinking. I am still fortunate to be JCV negative after 76 infusions. So I still go every 4 weeks.
When I first started, didn't feel anything. Then I started to feel it a few days before. Now most months, I feel it a week out. Fatigue increases, so fatigue related symptoms increase/appear. My husband and close friends are tuned into my infusion schedule just by my behavior!!! As fellow Ty users have said, I start "jonesing" for Ty.
For people who had to extend schedule, did you notice any changes? Were you sensitive to it before and did you eventually adjust? My biggest fear if I turn positive is feeling crappy for weeks on end, walking into walls, appearing drunk, tripping, dropping everything, conversation challenged, etc...
Due to holiday schedules and insurance rollover in New year, my Ty has been pushed out one extra week. I am really feeling it. I am sure the Holiday rush is exaggerating it this month as well.
But it started me thinking. I am still fortunate to be JCV negative after 76 infusions. So I still go every 4 weeks.
When I first started, didn't feel anything. Then I started to feel it a few days before. Now most months, I feel it a week out. Fatigue increases, so fatigue related symptoms increase/appear. My husband and close friends are tuned into my infusion schedule just by my behavior!!! As fellow Ty users have said, I start "jonesing" for Ty.
For people who had to extend schedule, did you notice any changes? Were you sensitive to it before and did you eventually adjust? My biggest fear if I turn positive is feeling crappy for weeks on end, walking into walls, appearing drunk, tripping, dropping everything, conversation challenged, etc...
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