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    Quitting copaxone

    Hi all.

    Can any past copaxone users please tell me how they are doing post copaxone?

    I have been taking it for years but I am on Medicare and I can't afford the copays.

    Any thoughts or suggestions would be appreciated
    Thanks
    Eileen

    #2
    Originally posted by Leenyi View Post
    Hi all.

    Can any past copaxone users please tell me how they are doing post copaxone?

    I have been taking it for years but I am on Medicare and I can't afford the copays.

    Any thoughts or suggestions would be appreciated
    Thanks
    Eileen
    I’m not on Copaxone, but I am on Medicare. Did you realize you can switch to an infusion (Tysabri, Ocrevus, or Lemtrada), and with a good Supplemental plan pay $0 copay? My total monthly medical bill is $285. That’s it!

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      #3
      Thanks ru4cats.

      Yeah I did finally realize that all of the infusions are under part b so my original medicare along with a medigap policy would cover most of the costs. I just didn't want to switch from the copaxone since its easy and seems to be working.

      Comment


        #4
        It really makes me angry the games people have to play to get coverage for a chronic disease or really any disease, to be frank.

        However, I am on Tysabri, and I have gone from a medical bill of $13000 a year under private insurance to $3000 under Medicare. I have moved to extended infusions, so I'm getting one stick every 49 days, and other than that, I live my life. It's great!

        Comment


          #5
          copay assistance

          The drug companies, Teva, Biogen, Genentech, have copay assist programs that cover most of what any insurance doesn't. The hospital submitted a $62,000 charge for my most recent Ocrevus infusion; BlueCross covered $57,000 and the drug copay card $5,000. Net out of pocket less than $100.

          Comment


            #6
            Originally posted by caldred View Post
            The drug companies, Teva, Biogen, Genentech, have copay assist programs that cover most of what any insurance doesn't. The hospital submitted a $62,000 charge for my most recent Ocrevus infusion; BlueCross covered $57,000 and the drug copay card $5,000. Net out of pocket less than $100.
            It is a federal law that copay assistance is not allowed with Medicare.

            Comment


              #7
              Thanks for all you're responses. The whole thing is so non transparent, expensive and stupid.

              Dealing with all this carp is more annoying than the ms!

              Comment


                #8
                Hi all.

                Today was a great new years!

                I was rushing around trying to get ready for a new years spaghetti dinner for my son's, their wives and my 4 grandkids age 2 to 12, when I got a text from the Pam Foundation saying that they had funds available for my copaxone.
                I banged out an application after our meal and was granted a $5800 rant to cover my out of pocket costs for 2019!

                I am so happy and relieved! It was a great day!!

                Happy New year's everyone!!
                Ei

                Comment


                  #9
                  Such great news! Did you mean to say the PAN foundation? I had never heard of it before, but sounds like another wonderful resource for assistance for pwMS and other diseases.

                  https://panfoundation.org/index.php/...iple-sclerosis

                  So happy for you and Happy New Year!
                  1st sx '89 Dx '99 w/RRMS - SP since 2010
                  Administrator Message Boards/Moderator

                  Comment


                    #10
                    Thank you Sasha!

                    I did mean the Pan foundation.
                    I am just so happy. I have really been worried. I couldn't believe it when they offered me the grant!

                    Family, food, grant! Best new years ever!

                    Comment

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