I am about to have my first infusion of Ocrevus and am trying to decide how many days of work to take off. I have to plan ahead to schedule a substitute so I wondered if anyone has had experience with this.
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I am on rituximab, precursor to ocrevus, and I have no down time after an infusion. I know others that struggle for up to a week with post-infusion malaise, but they are in the exception and not the rule. If possible, have your infusion done Thursday or Friday and that will give you the weekend to recover.
Just remember to go in fully hydrated and continue to hydrate to help your body recover. You can also ask your neurologist about continuing your pre-meds after the infusion to minimize any post-infusion reactions. Again, the majority of people do very well and don't take off from work to get their infusions (besides the infusion date).
I wish you well...
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My first dose infusions were both on Sundays and aside from the Benadryl after effects, they were uneventful. I only felt a little tired but a short nap took care of that. I also did yoga post infusion and nap, for what it’s worth.
Went to work the next day, no issues.
Wishing you well for your first infusion!
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Thank y’all for the advice and support. I have finished with the first two half infusions. First went well with no problems. I was a little more tired the next day but not unmanageable. The second dose I had horrible back/chest pain (ms hug?) that started the day after and lasted a few days. Not sure if it was related to the infusion or not. Felt like I had been run over and was not able to function or even walk to the bathroom for several days.
I will talk with my dr. at next appt. and see if it was related. At this point I don’t know if it will be worth it, although as days go by I am less discouraged.diagnosed November 2009
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I'm curious to hear people's experiences with this as well.
My first 1/2 dose infusion was on a Thursday , Friday I felt GREAT, and Saturday I was a fatigue ball-- and Sunday I was improving, but still tired. Monday back to normal.
The second 1/2 dose was the same deal, but not as extreme fatigue day 2 and 3 post. Monday , back to normal.
This time, they could only book me on a Tuesday (for my first full) so I took Tuesday, Thursday , Friday off work. I'm lucky to have the sick time available.. worried it might be overkill, but better safe than sorry, I guess?Diagnosed 7/11/11
On Copaxone 7/11- 12/13
On Tecfidera 12/13- current
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Too much Benadryl
Originally posted by Leah27 View PostI'm curious to hear people's experiences with this as well.
My first 1/2 dose infusion was on a Thursday , Friday I felt GREAT, and Saturday I was a fatigue ball-- and Sunday I was improving, but still tired. Monday back to normal.
The second 1/2 dose was the same deal, but not as extreme fatigue day 2 and 3 post. Monday , back to normal.
This time, they could only book me on a Tuesday (for my first full) so I took Tuesday, Thursday , Friday off work. I'm lucky to have the sick time available.. worried it might be overkill, but better safe than sorry, I guess?
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