Hello,
Been suffering from burning in the back of my thighs for 5 years now. It seems to come on gradual and intensifies in pain for 2-3 months before it starts to go away slowly over several months (it's always there though), then it comes back again and repeats. The pain feels like a bad sunburn, painful when anything touches my legs or even when sitting on a toilet. I've also been slowly developing leg weakness that's very noticeable when going up a slight incline, climbing stairs, etc. I can almost feel my energy leave my body and it's a bizarre sensation. I noticed this 3 years ago trying to walk through sand at the beach. It was like quicksand X10 and I had to stop and couldn't go further.
It seems like every time my legs start to flare up, then I develop a new symptom or two. 3 weeks ago or so, I developed a cold with a fever. I think the fever set off a flare-up because that's when things got really bad! Since then, I have balance issues, tripping, internal vibrations in my legs, blurry vision, tremors, cognitive and memory issues, and I was in bed for practically a week and a half with my feet on fire and pins and needles.
My PCP is quite sure I have an autoimmune disorder, she just doesn't know which one. I have seen 3 neurologists, 2 EMG/nerve conduction studies (both normal). Just had an appointment with my Neurologist today due to all the new symptoms, I am finally going to get an MRI of my brain! He said he doesn't know what's causing my symptoms but here is what he's put down in my chart the last 2 times I've seen him:
Posterior leg dysesthesias
Proximal muscle fatigue
hyperesthesia
bilateral leg pain, paresthesias, and weakness.
Hip Flexion (briefly full strength with giveaway weakness)
Knee Extension (briefly full strength with giveaway weakness)
Knee Flexion (briefly full strength with giveaway weakness)
Proprioception impaired at the toes.
Intermittent bilateral UE dysesthesias
Intermittent visual disturbance
CEREBELLUM: Finger-to-nose with mild end-point dysmetria
Is there anything in here that jumps out and says, " not MS" to anyone?
Thanks for any information
Been suffering from burning in the back of my thighs for 5 years now. It seems to come on gradual and intensifies in pain for 2-3 months before it starts to go away slowly over several months (it's always there though), then it comes back again and repeats. The pain feels like a bad sunburn, painful when anything touches my legs or even when sitting on a toilet. I've also been slowly developing leg weakness that's very noticeable when going up a slight incline, climbing stairs, etc. I can almost feel my energy leave my body and it's a bizarre sensation. I noticed this 3 years ago trying to walk through sand at the beach. It was like quicksand X10 and I had to stop and couldn't go further.
It seems like every time my legs start to flare up, then I develop a new symptom or two. 3 weeks ago or so, I developed a cold with a fever. I think the fever set off a flare-up because that's when things got really bad! Since then, I have balance issues, tripping, internal vibrations in my legs, blurry vision, tremors, cognitive and memory issues, and I was in bed for practically a week and a half with my feet on fire and pins and needles.
My PCP is quite sure I have an autoimmune disorder, she just doesn't know which one. I have seen 3 neurologists, 2 EMG/nerve conduction studies (both normal). Just had an appointment with my Neurologist today due to all the new symptoms, I am finally going to get an MRI of my brain! He said he doesn't know what's causing my symptoms but here is what he's put down in my chart the last 2 times I've seen him:
Posterior leg dysesthesias
Proximal muscle fatigue
hyperesthesia
bilateral leg pain, paresthesias, and weakness.
Hip Flexion (briefly full strength with giveaway weakness)
Knee Extension (briefly full strength with giveaway weakness)
Knee Flexion (briefly full strength with giveaway weakness)
Proprioception impaired at the toes.
Intermittent bilateral UE dysesthesias
Intermittent visual disturbance
CEREBELLUM: Finger-to-nose with mild end-point dysmetria
Is there anything in here that jumps out and says, " not MS" to anyone?
Thanks for any information
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