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    Mcky548

    Hi.....my name is melanie and was diagnosed with ms in 2007. I have had my good days and bad days, but lately I have had more bad days than good.have been on short term disability for just over five weeks now and am feeling so alone in all this. I have numbness in my left foot and have been dizzy and off balance quite often. Is this normal?

    #2
    Originally posted by mcky548 View Post
    Hi.....my name is melanie and was diagnosed with ms in 2007. I have had my good days and bad days, but lately I have had more bad days than good.have been on short term disability for just over five weeks now and am feeling so alone in all this. I have numbness in my left foot and have been dizzy and off balance quite often. Is this normal?
    Hi melanie

    Thanks for sharing what you have been dealing with.

    So sorry to learn that you've been having more bad days than good ones lately, and are unable to work.

    The symptoms you describe are not unusual for MS.

    Do you have Relapsing Remitting MS?

    Is your neuro aware of your new symptoms?

    It's possible that you are having a flare/relapse.

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      Mcky548

      Hi koko
      I have relapsing remitting ms. On September 21st I went to the er and was diagnosed with optical neuritis and had an iv port put in and had five days of high dose steroids. Then a week later I was back in the er after I was sitting outside and all of a sudden my car looked like there was 4 and I freaked me out. I am going to see my neurologist but could not get an appointment until December 21st.






      Originally posted by KoKo View Post
      Hi melanie

      Thanks for sharing what you have been dealing with.

      So sorry to learn that you've been having more bad days than good ones lately, and are unable to work.

      The symptoms you describe are not unusual for MS.

      Do you have Relapsing Remitting MS?

      Is your neuro aware of your new symptoms?

      It's possible that you are having a flare/relapse.

      Take Care

      Comment


        #4
        Originally posted by mcky548 View Post
        Hi koko
        I have relapsing remitting ms. On September 21st I went to the er and was diagnosed with optical neuritis and had an iv port put in and had five days of high dose steroids. Then a week later I was back in the er after I was sitting outside and all of a sudden my car looked like there was 4 and I freaked me out. I am going to see my neurologist but could not get an appointment until December 21st.
        Oh, I see. You were treated for a flare/relapse in September.

        I have PPMS and don't have first hand experience with what you are experiencing. So hopefully other members with RRMS will chime in.

        The only other thing that I'm thinking of is that sometimes an infection, such as a UTI, or a virus, can cause an increase in symptoms (called a pseudo-exacerbation or pseudo-relapse).

        Any chance of that?

        Take Care
        PPMS for 26 years (dx 1998)
        ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

        Comment


          #5
          Welcome Melanie.

          Did your optic neuritis reslove or are you still having residual symptoms? Vision issues can affect balance. Also, for me, if I am less active and find myself laying around more when sick, I can sometimes get dizzy.

          As Koko pointed out, infections can sometimes cause pseudo flares. These pseudo flares can also be triggered when overheated. For me, if overly fatigued and I don't listen to my body, I also get a pseudo flare.

          Finally, MS iteslf can cause dizziness, but so can other medical issues. If it persists, you may want to see an Ear, Nose, Throat specialist to see if any cause can be found and treated. My neuro prescribed vestibular therapy, a specialized form of PT. Some people benefit from it.

          Hope you feel better soon.
          Kathy
          DX 01/06, currently on Tysabri

          Comment


            #6
            Welcome, Mcky548.

            I've never experienced optical neuritis, but, in my experience, it often takes steroids a few weeks before they become effective. In fact, I often needed to be finished my IV's and my taper for awhile before my symptoms and flare ended.

            Hope you see improvement soon.
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
            .

            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment


              #7
              Hi from Lubalicious

              Originally posted by Mamabug View Post
              Welcome, Mcky548.

              I've never experienced optical neuritis, but, in my experience, it often takes steroids a few weeks before they become effective. In fact, I often needed to be finished my IV's and my taper for awhile before my symptoms and flare ended.

              Hope you see improvement soon.
              It's quite normal. I am so sorry.

              My name is Luba and I just got diagnosed with MS. I have been crying but I have great friends.

              Comment

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