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new member with probable MS diagnosis

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    new member with probable MS diagnosis

    Hi all, I just want to introduce myself! I went to the doctor a month ago with some difficulties walking that have been going on for years and difficulty with a tremor in my hand (also cognitive issues for a few years). I had an MRI that came back with "extensive confluent regions of FLAIR hyperintensity (without contrast) and periatrial regions T1 hypointense." The neurologist said she is fairly confident it is an MS diagnosis. I went for a spinal MRI which had no lesions. Then I had a head CT to look at vessels and rule out CNS vasculitis, also negative. I've had blood tests for all kinds of things, which mostly came back negative except I have severe vitamin D deficiency and could use more B12 as well. Last wednesday I had a lumbar puncture which I don't have results on yet, but that test has really laid me up and I've spent much of the last 5 days in bed (only a mild headache but a fair amount of dizziness).

    So I am still awaiting final diagnosis, although I know it takes time and I have been on something of a fast track. I am also feeling lonely in part because not a lot of people know (a some friends and family) but I've also been laid up in bed! And I am concerned about prognosis as I have never had an attack like one sees in relapsing-remitting, just gradual increase in symptoms.

    Glad to meet you all!
    Angela, 47, mom of 2 (9 and 12)

    #2
    Welcome Angela. Sorry that you had to find us.

    Waiting is always so hard, even for a short duration. For many, the unknown is harder than an actual diagnosis.

    Hope you feel better. Keep us updated.
    Kathy
    DX 01/06, currently on Tysabri

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      #3
      Hi Angela,
      sorry you may be a member of our not so exclusive club.
      Have had ms for many years but only found this site a few yrs ago and it has been very helpful .
      Share and ask questions if you need too.
      The process of diagnosis is the hardest time.
      Caroline

      Comment


        #4
        I'm glad you found us but sorry you need to be here.

        Please let us know the results of your lumbar puncture.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment


          #5
          Thanks all!

          Thanks for the kind words. I'm still waiting on results of the LP and it is driving me a little mad

          But the good news is that I'm feeling better. Monday and Tuesday I had more fatigue, a little headache, and dizziness, but today I am feeling pretty good.
          Angela, 47, mom of 2 (9 and 12)

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            #6
            LP results came back -- positive for MS

            So I finally got the results, and the are positive for MS. Given that we had ruled everything else out, I'm actually somewhat happy the results came back positive. Now I can stop wondering. Given the course of the disease for me, I think it is probably progressive. Doc is setting up appointment with an MS specialist now.
            Angela, 47, mom of 2 (9 and 12)

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              #7
              Originally posted by faroop View Post
              So I finally got the results, and the are positive for MS. Given that we had ruled everything else out, I'm actually somewhat happy the results came back positive. Now I can stop wondering. Given the course of the disease for me, I think it is probably progressive. Doc is setting up appointment with an MS specialist now.
              Sorry to hear about the diagnosis, but understand your relief at finally getting one.

              Glad you are being referred to a specialist. It sounds like you have a great doctor. Keep us updated.
              Kathy
              DX 01/06, currently on Tysabri

              Comment


                #8
                Yeah; being in limbo is hard. Receiving a diagnosis can be a relief.
                ~ Faith
                MSWorld Volunteer -- Moderator since JUN2012
                (now a Mimibug)

                Symptoms began in JAN02
                - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                .

                - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                Comment


                  #9
                  Sorry for your diagnosis but welcome, Angela!

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