Hi everyone. Apparently I registered here in 2011 and I'm back!
My MS symptoms have have occurred on and off for years and a few years ago and finally I was worked up with MRI's, nerve testing etc. which all seemed normal. I would swear that I have MS. Everything started out with right leg weakness and trembling sensation.
Several years ago I had an very elevated ANA along with rheumatoid factor. Was this lupus, rheumatoid arthritis or ms? Then I was diagnosed with Lyme and treated. My rheumatoid factor has been intermittently elevated through these years and my symptoms have waxed and waned like blurry vision and twitches.
I've started having symptoms again like muscle twitches and jerking, weakness, overwhelming fatigue, pain, spasticity among other things. And I'm scared. I'm scared of anything that isn't MS and I'd rather not mention the other diseases that scare the crap out of me.
I'm also a nurse and recently disabled by bipolar disorder. My brain fog, anxiety and depression, etc. make it impossible to work safely. I've also suffered from migraines since I was a small child. I'm currently having a AMOVIG trial which is the latest thing.
My bipolar seems fairly stable after several years of med trial and error. My history of anxiety make it easy to blame my symptoms on that but this has been a month of ms symptoms again that make me think I'm having a flare of something.
My NP is amazing and this time she isn't shipping me off to a neurologist and then rheumatologist again. Neuro referred to Rheum and Rheum referred neuro. She's working with me and I can't be happier. She's ordering everything for me and is sending me to a MS specialist *which will take ages to get in. In the meantime we've just done a bunch of labs and are scheduling an MRI again. I feel like she's taking me more seriously. Last time she thought it was too soon to see a specialist.
I'm here to meet others and learn about their symptoms and experiences. I'm one who does research (nurse) (anxiety, lol) and truly feel something is wrong but I will be happy to be proved wrong...
Finally, my last trial is having the BRCA 2 mutation along with my mom which makes us extremely susceptible to breast cancer. I haven't had a mastectomy yet but I'm closely monitored at this time and will probably have one in the future.
I will look forward to meeting you guys and following your stories.
My MS symptoms have have occurred on and off for years and a few years ago and finally I was worked up with MRI's, nerve testing etc. which all seemed normal. I would swear that I have MS. Everything started out with right leg weakness and trembling sensation.
Several years ago I had an very elevated ANA along with rheumatoid factor. Was this lupus, rheumatoid arthritis or ms? Then I was diagnosed with Lyme and treated. My rheumatoid factor has been intermittently elevated through these years and my symptoms have waxed and waned like blurry vision and twitches.
I've started having symptoms again like muscle twitches and jerking, weakness, overwhelming fatigue, pain, spasticity among other things. And I'm scared. I'm scared of anything that isn't MS and I'd rather not mention the other diseases that scare the crap out of me.
I'm also a nurse and recently disabled by bipolar disorder. My brain fog, anxiety and depression, etc. make it impossible to work safely. I've also suffered from migraines since I was a small child. I'm currently having a AMOVIG trial which is the latest thing.
My bipolar seems fairly stable after several years of med trial and error. My history of anxiety make it easy to blame my symptoms on that but this has been a month of ms symptoms again that make me think I'm having a flare of something.
My NP is amazing and this time she isn't shipping me off to a neurologist and then rheumatologist again. Neuro referred to Rheum and Rheum referred neuro. She's working with me and I can't be happier. She's ordering everything for me and is sending me to a MS specialist *which will take ages to get in. In the meantime we've just done a bunch of labs and are scheduling an MRI again. I feel like she's taking me more seriously. Last time she thought it was too soon to see a specialist.
I'm here to meet others and learn about their symptoms and experiences. I'm one who does research (nurse) (anxiety, lol) and truly feel something is wrong but I will be happy to be proved wrong...
Finally, my last trial is having the BRCA 2 mutation along with my mom which makes us extremely susceptible to breast cancer. I haven't had a mastectomy yet but I'm closely monitored at this time and will probably have one in the future.
I will look forward to meeting you guys and following your stories.
Comment