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    NEW THERAPIES

    I haven't been on this site in years. I have PPMS, I've been on high dose biotin for over 3 years, ALA supplement for 3-4 years, 12-15 hour daily fasting, Baclofen, Nortriptyline and Vit. B12, D, and a multi- vitamin. I've been using low level laser therapy for pain for the last ten months. I gave up gluten five years ago. I walk with a cane.

    #2
    Welcome Gertrude or should I say welcome back

    The site as changed, people come and go, but we're still a great community offering support for those in need and those needing questions answered.

    It sounds like your on a good path towards wellness! Would you explain your low level laser therapy for pain? What does this involve, who does this and is it effective? Hope to hear back from you.

    Again, welcome!
    1st sx '89 Dx '99 w/RRMS - SP since 2010
    Administrator Message Boards/Moderator

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      #3
      Originally posted by Gertrude View Post
      I haven't been on this site in years. I have PPMS, I've been on high dose biotin for over 3 years, ALA supplement for 3-4 years, 12-15 hour daily fasting, Baclofen, Nortriptyline and Vit. B12, D, and a multi- vitamin. I've been using low level laser therapy for pain for the last ten months. I gave up gluten five years ago. I walk with a cane.

      What is the fasting for? And welcome back...

      Comment


        #4
        Originally posted by Gertrude View Post
        I haven't been on this site in years. I have PPMS, I've been on high dose biotin for over 3 years, ALA supplement for 3-4 years, 12-15 hour daily fasting, Baclofen, Nortriptyline and Vit. B12, D, and a multi- vitamin. I've been using low level laser therapy for pain for the last ten months. I gave up gluten five years ago. I walk with a cane.
        Hi Gertrude and welcome back!

        Have you noticed any improvements with your regimen of supplements and fasting? I don't eat between 6pm and 8am, so I guess that I am doing a daily fast also.

        Hope to see you around here more often, looking forward to more of your posts!

        Take Care
        PPMS for 26 years (dx 1998)
        ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

        Comment


          #5
          It seems fasting generates new stem cells...

          Fasting like diet reduces multiple sclerosis symptoms

          https://www.sciencedaily.com/release...0526151941.htm

          Evidence is mounting that a diet mimicking the effects of fasting has health benefits beyond weight loss, with a new USC-led study indicating that it may reduce symptoms of multiple sclerosis.

          Scientists discovered that the diet triggers a death-and-life process for cells that appears critical for the body's repair.

          "During the fasting-mimicking diet, cortisone is produced and that initiates a killing of autoimmune cells," said Valter Longo, the study's lead author and professor who directs the USC Longevity Institute at the Davis School of Gerontology. "This process also leads to the production of new healthy cells."

          The new study, published in the journal Cell Reports, included mice and human patients who have multiple sclerosis.

          Another link...

          http://www.telegraph.co.uk/news/ukne...udy-finds.html

          Fasting for as little as three days can regenerate the entire immune system, even in the elderly, scientists have found in a breakthrough described as "remarkable".
          Although fasting diets have been criticized by nutritionists for being unhealthy, new research suggests starving the body kick-starts stem cells into producing new white blood cells, which fight off infection.

          Scientists at the University of Southern California say the discovery could be particularly beneficial for people suffering from damaged immune systems, such as cancer patients on chemotherapy.

          It could also help the elderly whose immune system becomes less effective as they age, making it harder for them to fight off even common diseases.

          The researchers say fasting "flips a regenerative switch" which prompts stem cells to create brand new white blood cells, essentially regenerating the entire immune system.

          Comment


            #6
            That’s interesting. I wish my internet wasn’t down so I could look at this stuff on my computer.

            I’m definitely going to look into this after this weekend.

            Comment


              #7
              Thanks for the info Myoak. I'm going to watch this. Unfortunately MS can wax and wane which makes me skeptical of short term outcomes. This was a nice but small RCT so it caught my interest.

              Ketogenic diet and prolonged fasting improve health-related quality of life and lipid profiles in multiple sclerosis –A randomized controlled trial

              https://www.researchgate.net/publica...ntrolled_trial
              He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
              Anonymous

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                #8
                Welcome back, Gertrude!
                ~ Faith
                MSWorld Volunteer -- Moderator since JUN2012
                (now a Mimibug)

                Symptoms began in JAN02
                - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                .

                - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                Comment


                  #9
                  I am going to read that fasting information tomorrow now that my internet is back up. I do have one question though for anyone who has tried it... how do you stop yourself from eating way to much after you get home from work. I tried this Friday and made it till 6 pm and I ate way too much.

                  I am sure some of the articles talk about it , but I am very tired and probably should go to bed soon, but my new neighbors are probably going to get the cops called out here. (Two drunk young college age kids yelling and throwing stuff off your balcony when your neighbor is the apartment manager = bad idea...)

                  And I took one of my muscle relaxers ( hate them so much but I can only take so much of wrestling 100 pound dogs before I give in). They keep me up , no matter how tired I am.

                  So since they are being loud and my dog is terrified and I going to wait to see what happens.

                  Comment


                    #10
                    Daisycat --

                    Tomorrow, you might also be interested in checking put my thread about my functional medicine doctor. He believes that food is medicine and also emphasizes getting rid of toxins, reducing stress, etc.

                    I've been seeing him for about three months. He claims that I can be symptom free in two years.

                    I'm pretty skeptical about that. But I've already noticed that symptoms are not continuing to worsen, which they had been for awhile. My MS is getting to the point of transitioning from RRMS to SPMS.

                    https://www.msworld.org/forum/showth...ree-sugar-free
                    ~ Faith
                    MSWorld Volunteer -- Moderator since JUN2012
                    (now a Mimibug)

                    Symptoms began in JAN02
                    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                    .

                    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                    Comment


                      #11
                      Originally posted by Mamabug View Post
                      Daisycat --

                      Tomorrow, you might also be interested in checking put my thread about my functional medicine doctor. He believes that food is medicine and also emphasizes getting rid of toxins, reducing stress, etc.

                      I've been seeing him for about three months. He claims that I can be symptom free in two years.

                      I'm pretty skeptical about that. But I've already noticed that symptoms are not continuing to worsen, which they had been for awhile. My MS is getting to the point of transitioning from RRMS to SPMS.

                      https://www.msworld.org/forum/showth...ree-sugar-free

                      I'll take a look at that tomorrow. Right now I am just thankful drunk neighbors are quiet. My back hurts to much to read new stuff in detail. I guess that one bad part of my job is dealing with a sore back some nights... but I'll take that if that is the only real problem.

                      Comment


                        #12
                        Hello Gertrude and welcome!


                        Thank you for informing us about the treatments you employ. Going forward, Progressive MS is going to get far more attention than previously and its about time, too!

                        Just to follow up on the food and diet posts above I will post part of an abstract to be presented at ECTRIMS on Oct. 10...

                        Comment


                          #13
                          Diet quality is associated with mobility and cognitive function in people with multiple sclerosis

                          Background: People with multiple sclerosis (MS) are at increased risk of metabolic disorders like diabetes and hyperlipidemia. Aspects of diet are important determinants of metabolic comorbidities in the general population and influence mechanisms relevant to MS (immune/mitochondrial function, oxidative stress and action of gut microbiota). However, evidence linking diet with objective MS outcomes is sparse.

                          Objective: To assess the association between diet quality and disability and neurological function in people with MS.

                          Methods: We conducted an observational study of people with MS who completed MS Performance Test-based (MSPT) assessment of neurologic function and a 153-item food frequency questionnaire. For each individual, we calculated the Healthy Eating Index-2010, which is a composite measure of dietary quality favorably weighting an individual's intake of fruits, vegetables, legumes, seafood/plant proteins, whole grains, mono/polyunsaturated fat, other proteins and unfavorably weighting intakes of sodium, added-sugars and refined grains. Scores ranged from 0 (poorest quality) to 100 (optimal quality). We evaluated the association between diet scores and MS outcomes including disability (Patient Determined Disease Steps [PDDS]) and objective neurological outcomes (walking speed, manual dexterity and processing speed) using generalized linear models, as appropriate and adjusting for age, sex, disease subtype and duration, years of education and body mass index (BMI).

                          Results: We analyzed data from 277 participants (78% female, mean age: 48.2y [standard deviation; SD: 12.7y], mean BMI: 28.2 [SD: 7.5]) who completed MSPT and diet assessments. Participants in the highest quartile of dietary quality had significantly higher processing speeds, faster 25-foot walking speeds and marginally faster manual dexterity speeds relative to individuals in the lowest quartile... Individuals in the highest quartile were also at a significantly lower risk of moderate vs. mild disability.

                          Conclusions: High dietary quality was associated with lesser disease severity using measures of disability, mobility and cognitive function. Longitudinal studies should evaluate if high quality diets predict slower rates of disability accrual.

                          Comment


                            #14
                            Hi Gertrude - welcome back. Seems like you are doing all you can to control what you can. Congrats on that.

                            Really interested as well if you have noticed anything. Thanks for posting all you do.

                            With MS, I always wonder about a lot of studies, both pharmaceutical and academic. Due to the relapsing nature for many, I always wonder, how accurate. I would have distorted due to length of time between 1st and 2nd relapse, let alone when lingering symptoms started to appear.

                            As for diet, glad they are doing studies. For RRMS, some of it seems pretty basic: the better you eat, the better you feel, which in turn, helps with how active you may be, which in turn, makes you want to eat better. Not to mention the diet and exercise component of fatigue.

                            So less inflammatory foods, better for disability progression. The big question for MS - what defines the best way to eat and least inflammatory?

                            The fasting intrigues me related to the immune system. Of course, I also wonder what cardiologists and other specialists feel about fasting. Hope that is part of the study.
                            Kathy
                            DX 01/06, currently on Tysabri

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