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Serious med issue, not the ms meds, but all tied together

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    Serious med issue, not the ms meds, but all tied together

    Hi, I have RRMS, been feeling like a flare for several months (yes, months).
    Neuro of the country due to family emergency. He has been my only one since dx 9 yrs ago. He is specialist, head of dept in teaching school. I am unable to see ANYONE there till Dec. Made appt months ago. Just being told to go to ER. Have insurance but cant afford the copay for another neuro right now. So no neoru to consult.
    My primary care dr, who really was great and took fantastic care of me moved to a new practice a few months ago that does not take my insurance.

    I went to new Dr at where he was at, and wanted to document my ms issues and see about getting off of Cymbalta and then getting back to Zoloft. Cymbalta did nothing for my leg pains but made me a zombie. Been one for over a year. He wrote me a script for 100mg Zoloft (I was on 50 before, all in my chart there). Told me to stop Cymbalta right away and start Zoloft in morning.
    Also wrote me amitriptyline to take at night INSTEAD of my well working Ambien. (well established for me that is what only works without side effects or sluggish next day.
    Now for issues, stopped amitriptyline after 3 night and days and totally sleepiness. I knew I couldnt take rhat crap. Back to Ambien. That is fine. But been feeling not right emotionally, head inside feels weird. I asked him was it ok to stop the C and start the Z and he said it is fine. Well, not for my brain!

    Does anyone here know from experience about the antidepressants like that? I am already stressed from a lot of home issues, the ms pain and super weakness and fatigue, can not think clearly.
    Sorry so long, just wanted to tell why I feel like I am in a boat with no paddles.
    Input?

    #2
    I forgot to mention that my neuro started me out in Aubagio 7mg. Wondering if he planned to up it to 14mg because maybe that's why for months I just keep getting weaker, hurting more, processing infomation slowly. Took me a long time to write this.
    Tired of being tired, my soul is tired.

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      #3
      I'm so sorry you're having a rough time. Even though it is frustrating to continue to see new doctors, it really sounds like you need to find another one. Antidepressants are very tricky to manage and cutting off cold turkey and jumping on board with a new one can be very hard on your body. In the long run it might be the best scenario for you, but the transition period might be rough. I suggest you go back to the doctor you just saw to tell him how things are going. You clearly know when something works and when it doesn't. If this doctor isn't willing to work with you, find another one.

      I don't know anything about Aubagio, but if you don't feel like it isn't working, it is your neuro's responsibility to try other things and perhaps that means a different dosage. Maybe call the neuro's office and ask to be put on a cancellation list and tell them that your medication needs to be evaluated.

      Have you had an MRI recently?

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        #4
        So sorry for your neuro issues, your med issues, your MS issues, etc.

        I don't have advice for most of it. Except this. I've become a big believer that "food is medicine". Eat well. Lots of fruits and vegetables; consider organic. Consider ditching wheat and dairy. Reduce animal-based protein, eat nuts and seeds. Consider grass-fed meats, free range chicken. If those products are in your budget. And, even if they aren't, just focus on lots of fruits and vegetables.

        Try it for 2-4 weeks, at least. A few months, if you can. See if it helps your depression; see if it helps your flare.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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