Hi,
my name is Ashley. I’m 30 (31 in November) I’m new to this forum, in fact i’ve Never been on any kind of a forum before but decided to give this a try.
I live in Newfoundland, Canada. In April of 2017 (I was 29 at the time)I took a trip to Alberta to visit my sister. It was a very long and tiring trip to get there. The day after I arrived, I woke up with a blurry left eye. It was almost like a film was over my eye. I didn’t think much of it, I thought it may of been from pressure changes from flying. After a day though, the blurring in my eye got significantly worse and my eye hurt when I would move it. I decided I should see a optometrist as I was afraid my retina was detached or something. I went to the eye doctor and did a ton of tests to find out I had retrobulbar optic neuritis. The optometrist also told me that I needed to have 3 days of IV steroids and 10 days of oral steroids. He then told me I needed an MRI because there was a 40% chance i could have MS.
All I could think was WHAT?! How could I possibly have MS? I mean I didn’t know anyone with MS, and it didn’t run in my family (which before all this, I thought it was purely familial) anyhow when I got back home to NL, I got an MRI, and my neurologist told me that there were lesions on my brain. She didn’t say how many or how big they were and I can’t remember where she said they were on my brain(I admit all the info was overwhelming at once) but other than the optic neuritis, and and the lesions, I had no other symptoms of MS. It has been a year and a half since I had optic neuritis. I didn’t regain my vision fully in my eye, it’s still very blurred. I had another MRI in April of this year and there wasn’t any changes, no growth in the lesions and no new ones .
My neurologist suggested a lumbar puncture, so I had that done in June. I got the results from the L.P. 2 weeks ago and found out it was positive for [COLOR=rgba(0, 0, 0, 0.870588)]Oligoclonal bands. My neurologist said that even though the L.P. Came back positive, everything still wasn’t enough for a diagnosis. Something either has to change in my MRI, or I need to have another symptom.
My question is, does anyone else have a story like mine? Are you still waiting to find out if you have MS or not? I am frustrated because it’s already almost been 2 years ( I know a lot of people have been waiting a lot longer) I’m scared that I will get another optic neuritis flare up in my right eye and completely lose my vision. That is my worst fear right now because If that happens, I will not be able to work anymore (I’m a medical laboratory technologist) I just graduated from my program in 2016, so I have only been working for 2 years. I guess i’m Just scared and I don’t know anyone in my situation to talk to..[/COLOR]
my name is Ashley. I’m 30 (31 in November) I’m new to this forum, in fact i’ve Never been on any kind of a forum before but decided to give this a try.
I live in Newfoundland, Canada. In April of 2017 (I was 29 at the time)I took a trip to Alberta to visit my sister. It was a very long and tiring trip to get there. The day after I arrived, I woke up with a blurry left eye. It was almost like a film was over my eye. I didn’t think much of it, I thought it may of been from pressure changes from flying. After a day though, the blurring in my eye got significantly worse and my eye hurt when I would move it. I decided I should see a optometrist as I was afraid my retina was detached or something. I went to the eye doctor and did a ton of tests to find out I had retrobulbar optic neuritis. The optometrist also told me that I needed to have 3 days of IV steroids and 10 days of oral steroids. He then told me I needed an MRI because there was a 40% chance i could have MS.
All I could think was WHAT?! How could I possibly have MS? I mean I didn’t know anyone with MS, and it didn’t run in my family (which before all this, I thought it was purely familial) anyhow when I got back home to NL, I got an MRI, and my neurologist told me that there were lesions on my brain. She didn’t say how many or how big they were and I can’t remember where she said they were on my brain(I admit all the info was overwhelming at once) but other than the optic neuritis, and and the lesions, I had no other symptoms of MS. It has been a year and a half since I had optic neuritis. I didn’t regain my vision fully in my eye, it’s still very blurred. I had another MRI in April of this year and there wasn’t any changes, no growth in the lesions and no new ones .
My neurologist suggested a lumbar puncture, so I had that done in June. I got the results from the L.P. 2 weeks ago and found out it was positive for [COLOR=rgba(0, 0, 0, 0.870588)]Oligoclonal bands. My neurologist said that even though the L.P. Came back positive, everything still wasn’t enough for a diagnosis. Something either has to change in my MRI, or I need to have another symptom.
My question is, does anyone else have a story like mine? Are you still waiting to find out if you have MS or not? I am frustrated because it’s already almost been 2 years ( I know a lot of people have been waiting a lot longer) I’m scared that I will get another optic neuritis flare up in my right eye and completely lose my vision. That is my worst fear right now because If that happens, I will not be able to work anymore (I’m a medical laboratory technologist) I just graduated from my program in 2016, so I have only been working for 2 years. I guess i’m Just scared and I don’t know anyone in my situation to talk to..[/COLOR]
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