Desperate! Almost 3 years in limboland

[rogier1973]

I have seen 3 neuro’s (2 ms-specialist), they find 3 non specific lesions in brain.


In my spine they fount 2 “doubtfull” lesions (but had no explanation) at c5 and t7-t8.


I also had a LP (i had wanted by myself because symptoms slowly increased).
The LP had an slight elevated “total protein” but no “o-bands” and igg-index was also normal. One protein called s-100 was slightly increases but was not important.


I dont have ms said the neuro’s, but i doubt about it, because i have many physical symptoms such as weaker legs, stiff muscles, random pricking feelings in legs, sore tongue, swallowing problems (little weak voice)pain neck, numbness tip of toes etc etc....


Dont know what to do😢😢😬? Any advice?

[SNOOPY]

Hi rogier1973.

You have had 3 Neurologist tell you, you don't have MS. Is there a reason you don't want to believe them? There is no symptom(s) exclusive to MS, many conditions can cause similar symptoms. Did you ever see an Ear, Nose, Throat (ENT) specialist about your difficulty swallowing? This was suggested to you in a previous Thread you started. How was your Neurological exam?

The three Neurologists might be right ~ you don't have MS. Maybe looking in a different direction might be more helpful for you.

Take care.

[rogier1973]

I would like to answer your wuestion by sending a photo of mri, then i can explain something, is this possible? =SNOOPY;1512239]Hi rogier1973.

You have had 3 Neurologist tell you, you don't have MS. Is there a reason you don't want to believe them? There is no symptom(s) exclusive to MS, many conditions can cause similar symptoms. Did you ever see an Ear, Nose, Throat (ENT) specialist about your difficulty swallowing? This was suggested to you in a previous Thread you started. How was your Neurological exam?

The three Neurologists might be right ~ you don't have MS. Maybe looking in a different direction might be more helpful for you.

Take care.[/QUOTE]

[KoKo]

I would like to answer your wuestion by sending a photo of mri, then i can explain something, is this possible?

Hi rogier1973

If you have a link to your MRI scan, you may put it in your profile, where registered members can view it.

Keep in mind, however, that we are not trained professionals with MRI interpretation. It would be best to let the Radiologist and Neurologist interpret your MRI.

Take Care

[rogier1973]

Oke, go to profile.....have to click on wich buttom? Thanks...



QUOTE=KoKo;1512292]Hi rogier1973

If you have a link to your MRI scan, you may put it in your profile, where registered members can view it.

Keep in mind, however, that we are not trained professionals with MRI interpretation. It would be best to let the Radiologist and Neurologist interpret your MRI.

Take Care[/QUOTE]

[KoKo]

Oke, go to profile.....have to click on wich buttom? Thanks.

rogier1973 ~

On the Message Boards page, arrow your username on the top black bar. On the drop down menu, choose Settings.

On the left sidebar, under My Settings, choose Edit Profile.

Scroll down to Additional Information - URL's can be inserted there.