Hey guys! Long time no talk... soooo I was hoping to get your opinions. My neurologist wants me to start Tysabri. Had an optic neuritis incident while on Rebif that made me lose partial sight in my right eye (temporarily?) a few weeks ago. Been on Rebif a little over 3 years.
Im skeptical because I know he’s a big Tysabri guy and this drug scares me. I’m jcv neg (.11) but what about encephalitis? Lung infections? UTI? How often do you guys get these things? Just looking for personal experiences from people who use Tysabri.
Also, I have teeny veins besides one big one in my arm that every doc likes to use. Will using Tysabri destroy my good vein after a while? How have your veins been while using this drug long term?
Last, I hear the rebound is BAD if you leave Tysabri. Worst break up ever. ;-)
thanks for responding. These are questions I’ve asked my (Biogen fan) neurologist but I’m looking for personal experiences from people who use the drug or love someone who uses it.❤️
Im skeptical because I know he’s a big Tysabri guy and this drug scares me. I’m jcv neg (.11) but what about encephalitis? Lung infections? UTI? How often do you guys get these things? Just looking for personal experiences from people who use Tysabri.
Also, I have teeny veins besides one big one in my arm that every doc likes to use. Will using Tysabri destroy my good vein after a while? How have your veins been while using this drug long term?
Last, I hear the rebound is BAD if you leave Tysabri. Worst break up ever. ;-)
thanks for responding. These are questions I’ve asked my (Biogen fan) neurologist but I’m looking for personal experiences from people who use the drug or love someone who uses it.❤️
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