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    Gut biome testing.....

    Anybody have any gut biome testing done? Any information to share?
    The future depends on what you do today.- Gandhi

    #2
    I'm curious about this too, so I hope someone answers. I actually saw a neurologist once who was also a functional medical doctor. I was already doing nearly everything he recommended, so the only thing I wanted done was the gut testing. He would not let me do that on its own - he insisted I went through his whole $5,000 (or so) program even though I had been putting most of it it in to practice for quite some time. I got so discouraged and never went to him again. But, here it is 2 or 3 years later and I'm still so curious about that gut testing!

    Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
    Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
    EDSS of 5.5, sometimes 6.0

    Comment


      #3
      I've also been following this with interest, wondering if someone would answer.

      I am currently, in addition to my MS Specialist, seeing a functional medicine / clinical nutrition doctor. He's done the 184 Food Panel food sensitivity and allergy test. I'm posting about it here: https://www.msworld.org/forum/showth...ree-sugar-free

      jjs -- I'd be interested in hearing about what changes you've made, related to functional medicine. I'd love it if you'd post some of that on the thread at the above link.


      He hasn't said anything about gut biome testing, but I know the "gut" is pretty high in the interest level for health and wellness and reducing illness.
      ~ Faith
      MSWorld Volunteer -- Moderator since JUN2012
      (now a Mimibug)

      Symptoms began in JAN02
      - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
      - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
      .

      - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
      - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

      Comment


        #4
        I'm going to look into it. Ill let you guys know whats up.
        The future depends on what you do today.- Gandhi

        Comment


          #5
          Originally posted by Mamabug View Post
          I've also been following this with interest, wondering if someone would answer.

          I am currently, in addition to my MS Specialist, seeing a functional medicine / clinical nutrition doctor. He's done the 184 Food Panel food sensitivity and allergy test. I'm posting about it here: https://www.msworld.org/forum/showth...ree-sugar-free

          jjs -- I'd be interested in hearing about what changes you've made, related to functional medicine. I'd love it if you'd post some of that on the thread at the above link.


          He hasn't said anything about gut biome testing, but I know the "gut" is pretty high in the interest level for health and wellness and reducing illness.
          Thanks!! I'll check out the other post

          Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
          Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
          EDSS of 5.5, sometimes 6.0

          Comment


            #6
            Waiting on my results

            I just sent off my 2 poop samples 2 weeks ago, so I'm expecting the results to come into my functional NPs office in the next week or so. I'll let y'all know what it says.

            I have made lots of changes, in addition to starting to read Dr. Wahl's Protocol book again. I've cut out most gluten, all refined starchs and sugars. Now drinking a lot more protein shakes and more salads and whole foods (non-GMO and organic if I can get them). I also have cut down on carbs to about 80 gms/day (still working on that one). But my energy is so much better that I am no longer taking my Modafinil.
            Melissa
            _____________________
            Symptoms started around 2000, Diagnosed with RRMS April 2014, On Copaxone.

            Comment


              #7
              Thanks for posting. Following with interest.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment


                #8
                Originally posted by cptmelissa View Post
                I just sent off my 2 poop samples 2 weeks ago, so I'm expecting the results to come into my functional NPs office in the next week or so. I'll let y'all know what it says.

                I have made lots of changes, in addition to starting to read Dr. Wahl's Protocol book again. I've cut out most gluten, all refined starchs and sugars. Now drinking a lot more protein shakes and more salads and whole foods (non-GMO and organic if I can get them). I also have cut down on carbs to about 80 gms/day (still working on that one). But my energy is so much better that I am no longer taking my Modafinil.
                Interested in the results.....cutting out most gluten doesn't work, you have to cut it all. Once you developed good eating habits it gets easyier. Most people don't even want to try. Stay strong!
                The future depends on what you do today.- Gandhi

                Comment


                  #9
                  Originally posted by Boudreaux View Post
                  .....cutting out most gluten doesn't work, you have to cut it all.
                  Please tell me more about this. Cutting out most gluten worked to get rid of intestinal / diarrhea symptoms in the past. What does it not work for? And, can you explain why it doesn't work? Thanks.
                  ~ Faith
                  MSWorld Volunteer -- Moderator since JUN2012
                  (now a Mimibug)

                  Symptoms began in JAN02
                  - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                  - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                  .

                  - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                  - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                  Comment


                    #10
                    Boudreaux -- I'm still interested in learning why cutting back on gluten, rather than cutting out all gluten is not successful. What is it not successful for, and why isn't gluten reduction still helpful?

                    cptmelissa -- Have you received the results from your gut biome testing yet? Are your dietary changes still going well?
                    ~ Faith
                    MSWorld Volunteer -- Moderator since JUN2012
                    (now a Mimibug)

                    Symptoms began in JAN02
                    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                    .

                    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                    Comment


                      #11
                      Originally posted by Mamabug View Post
                      Boudreaux -- I'm still interested in learning why cutting back on gluten, rather than cutting out all gluten is not successful. What is it not successful for, and why isn't gluten reduction still helpful?

                      cptmelissa -- Have you received the results from your gut biome testing yet? Are your dietary changes still going well?
                      My apologies for not answering sooner. When you ingest gluten your body reacts for a number of weeks even if you ingested a small amount. If you eliminate it 100% and decide you want to have a pizza night, you may have a severe reaction. If something isn't jiving with your body, eliminate it fully. You may notice some gains/benefits through reduction but if you really have a sensitivity you will definitely improve by eliminating it.
                      The future depends on what you do today.- Gandhi

                      Comment

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