Went for my first infusion last weekend at Stanford, here is my experience so far.
In short it was straightforward, no reactions, and after 4.5 hrs we were returning home.
Similar protocol as I’ve read on posts from others:
-Tylenol caplets 625mg
-Benadryl IV 25mg (made me loopy)
-solu-medrol IV 100mg
Then the Ocrevus.
I didn’t have any infusion reactions. No flushing, tingling, etc. The infusion was over 3.5 hrs from the time I was seated in the infusion chair. Then they observed me for an hour to make sure no late reactions came on.
My wife joined me there as my designated driver for the ride home, she brought some knitting to keep busy. Unfortunately her chair was not as comfortable as mine! She had packed some food & water for us for when we got hungry. While she was knitting I did some reading during the infusion.
The only issue I had that day was the residual tired feeling from Benadryl. Nothing else. Felt rested after an hour nap and then did 30 mins of yoga that afternoon.
Have been fine since and resumed all normal activity.
All the posts I read from others telling of their experiences helped me greatly, so I write this in hope that it helps someone else on their path.
I will report again when I go back in just over a week for 1b. Thanks for reading.
In short it was straightforward, no reactions, and after 4.5 hrs we were returning home.
Similar protocol as I’ve read on posts from others:
-Tylenol caplets 625mg
-Benadryl IV 25mg (made me loopy)
-solu-medrol IV 100mg
Then the Ocrevus.
I didn’t have any infusion reactions. No flushing, tingling, etc. The infusion was over 3.5 hrs from the time I was seated in the infusion chair. Then they observed me for an hour to make sure no late reactions came on.
My wife joined me there as my designated driver for the ride home, she brought some knitting to keep busy. Unfortunately her chair was not as comfortable as mine! She had packed some food & water for us for when we got hungry. While she was knitting I did some reading during the infusion.
The only issue I had that day was the residual tired feeling from Benadryl. Nothing else. Felt rested after an hour nap and then did 30 mins of yoga that afternoon.
Have been fine since and resumed all normal activity.
All the posts I read from others telling of their experiences helped me greatly, so I write this in hope that it helps someone else on their path.
I will report again when I go back in just over a week for 1b. Thanks for reading.
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