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    Can I expect to have a good outcome?

    I know I should just be living in the moment but can't help wondering what my future holds at times, it's only natural thought.

    Right now I almost fully recovered from my nasty dx flare, doing well in school, still working, recently single tho, but living a full and active life.

    No sx or relapse since dx in sept/oct last year just constant improvements and enjoying life. I do wat I can with diet, meditation and excersize still a fair amount.

    my neuro seems not to worried about me (I think?) and says that tecfidera is likely doing its job by now (7 months).

    not sure wat I'm looking for with this post, no one can give me any answers, but enjoy hearing opinions from fellow ppl who have been through this mental game.

    Zoloft seems to be taming some of my anxiety tho, but I guess that never goes completely away.

    I feel good and enjoying life but still i need to focus focus more on now, not in the future cause I have little control over that and no one really knows.

    anyways I'll keep on keepin' on and hope for the best.. feels like a safety net with holes and rips in it and is no garuntee that it will catch me if I fall.

    thanks for any insight on this topic.

    #2
    Hi Ant.

    Even if you didn't have MS there is no way to know how your life will turn out. Life, in general is unpredictable. No one knows what the life long outcome will be with MS and the reason no one, even your Drs. cannot give you an answer.

    Everyone is going through something in this life, the only thing we can do is be their light in the dark. I hope those on MSWorld, including myself, can be the light if and when you need us.

    Stay positive, stay away from negative thoughts, and take care of yourself
    Diagnosed 1984
    “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

    Comment


      #3
      Can I expect to have a good outcome?

      To answer that directly I'd say No,
      however you can certainly hope for a good outcome and do what you can such as eating healthy, exercising to your ability, avoiding tobacco, excessive alcohol and illicit substances. Snoopy makes a good point because with or without MS we really don't know what is going to come down the road. I plan for the worst but hope for the best.

      I really appreciate that you are moving forward by attending school to make a sensible career change. Working for as long as we can and saving money, in my opinion, is a crucial stragety unless someone is independently wealthy, which I am not, lol.
      He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
      Anonymous

      Comment


        #4
        Originally posted by Jules A View Post
        Can I expect to have a good outcome?

        To answer that directly I'd say No,
        however you can certainly hope for a good outcome and do what you can such as eating healthy, exercising to your ability, avoiding tobacco, excessive alcohol and illicit substances. Snoopy makes a good point because with or without MS we really don't know what is going to come down the road. I plan for the worst but hope for the best.

        I really appreciate that you are moving forward by attending school to make a sensible career change. Working for as long as we can and saving money, in my opinion, is a crucial stragety unless someone is independently wealthy, which I am not, lol.
        Meant strategy although I kind of like stragety rhymes with tragedy? Working so much indeed feels like a tragedy on occasion. A fabulous Freudian slip.
        He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
        Anonymous

        Comment


          #5
          Originally posted by Jules A View Post
          Meant strategy although I kind of like stragety rhymes with tragedy? Working so much indeed feels like a tragedy on occasion. A fabulous Freudian slip.
          Jules: "Eminem" would envy that rap!
          Ant: Have you been diagnosed with MS for a full year yet? I unaffectionately refer to it as "the lost year". MS will always suck until we can prevent or cure it, but most of us learn to "deal"...at least eventually. I live my life more now and think about (dare I speak its name?) Multiple Sclerosis less.

          This thief of a disease has taken ENOUGH from me without occupying my every waking thought. Even if I could have a crystal ball, I wouldn't want one, would you?
          Tawanda
          ___________________________________________
          Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

          Comment


            #6
            Originally posted by SNOOPY View Post
            Hi Ant.

            Even if you didn't have MS there is no way to know how your life will turn out. Life, in general is unpredictable. No one knows what the life long outcome will be with MS and the reason no one, even your Drs. cannot give you an answer.

            Everyone is going through something in this life, the only thing we can do is be their light in the dark. I hope those on MSWorld, including myself, can be the light if and when you need us.

            Stay positive, stay away from negative thoughts, and take care of yourself
            Spot on. Very well said.

            I'd like to share two stories. My good friend has MS; been dx'd for about 20 years. One relapse and then many years later another, and you'd never know this person has it. I on the other hand (assuming the doctors are right about it being MS) have been going downhill non-stop. I went from seemingly healthy and very active, to needing walking aids or electric carts in about 6 years time. Every single day is a struggle, but I face it head on and do the best I can.

            I like to hear the experience of others ... but everyone is different. I suggest you live one day at a time and be thankful Things never turn out like we imagine they will. At the beginning if all if this I didn't know what MS was, and even when I learned about it, I still assumed I could just change my diet or exercise more or whatever and I'd be better.

            Some get by without much changing at all, ever. Some get by for many years with really no changes and then slowly progress. Others steadily / consistently get worse. Some get slammed straight up. And some get in a freak accident and die young. You just never know. So ... one day at a time with thankfulness.

            Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
            Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
            EDSS of 5.5, sometimes 6.0

            Comment


              #7
              Originally posted by jjs View Post
              Spot on. Very well said.

              I'd like to share two stories. My good friend has MS; been dx'd for about 20 years. One relapse and then many years later another, and you'd never know this person has it. I on the other hand (assuming the doctors are right about it being MS) have been going downhill non-stop. I went from seemingly healthy and very active, to needing walking aids or electric carts in about 6 years time. Every single day is a struggle, but I face it head on and do the best I can.

              I like to hear the experience of others ... but everyone is different. I suggest you live one day at a time and be thankful Things never turn out like we imagine they will. At the beginning if all if this I didn't know what MS was, and even when I learned about it, I still assumed I could just change my diet or exercise more or whatever and I'd be better.

              Some get by without much changing at all, ever. Some get by for many years with really no changes and then slowly progress. Others steadily / consistently get worse. Some get slammed straight up. And some get in a freak accident and die young. You just never know. So ... one day at a time with thankfulness.
              You didn’t have an MS diagnosis? You steadily got worse right from the start of any sx’s? Doesn’t sound like RRMS. Im guessing you never went on a MS treatment either? Everyone is so different, that is so true, but the vast majority are doing ok, I gather the more I speak with.

              one year for me will be sept. 2018, so far so good just hoping it stays that way but the unknown bothers me still. After a few years of being in this current state, I’ll slowly think less and less about it too 😊

              i do do like reading about the ppl’s experiences as well.

              Comment


                #8
                I was diagnosed 21 years ago. You would have no idea I have it. My hands and feet are basically numb and I deal with fatigue and heat sensitivity but that's mostly it at this point. Stay on your medications (don't skip) and take vitamins. That's the most important thing. I believe the longer you have MS, the easier it is to predict how you'll do. Good luck!

                Comment


                  #9
                  Yes you can,be hopeful its one of the strongest medicines against ms

                  and its realistic as well,most people live normal and near normal lives

                  Comment


                    #10
                    Originally posted by Shawshank View Post
                    I was diagnosed 21 years ago. You would have no idea I have it. My hands and feet are basically numb and I deal with fatigue and heat sensitivity but that's mostly it at this point. Stay on your medications (don't skip) and take vitamins. That's the most important thing. I believe the longer you have MS, the easier it is to predict how you'll do. Good luck!
                    great to read.did you have any relapses during those 21 years? and did you take medications?

                    Comment


                      #11
                      The truth is I'm not sure if I've had relapses. Nothing major certainly. But I also have more problems (albeit minor) than when I was first diagnosed. I used to have pain, but that's gone away. Aside from during my pregnancy, I have missed one dose of medication in 21 years. I really do believe that's the key. Also, I'm on Vitamins B, C, D, Biotin, and Magnesium.

                      Comment


                        #12
                        We all wonder that...

                        Hi Ant,
                        Its hard to say, but your odds of having a good outcome are much better today than they were 20 years ago. Go to the conference center, on this website, and watch Dr Kantor’s interviews at CMSC last month. One seasoned neurologist says he thinks we can stop all disease activity in something like 50% of new patients now. Some for the next 5 years. Some forever.

                        And those numbers are only going to get better.

                        After my lost year of freaking out and recovering from my Dx flair, I’m very close to normal. Now 56, I run, travel, work a challenging job, and pretty much live normally. Only difference is that now I take better care of myself.

                        My neurological exam is normal. Of course it could all go horribly bad tomorrow, which is why I continue to keep my annual appointments with my neurologist, but who knows?

                        So, I’m not saying you’ll be just fine. Just that you might be.

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