Has anybody tried this drug to help with walking?
Announcement
Collapse
No announcement yet.
FAMPYRA
Collapse
X
-
Yes was explained to me how it could work if it's going to. How long have you been taking it? I t obviously improved things for you in the time frame given.
How did you fee it improved your walking? Have you felt ay other benefit with it?
Hopefully if all things line up for me I could start as early as tomorrow.Gubbins
Comment
-
Originally posted by gubbins View PostYes was explained to me how it could work if it's going to. How long have you been taking it? I t obviously improved things for you in the time frame given.
How did you fee it improved your walking? Have you felt ay other benefit with it?
Hopefully if all things line up for me I could start as early as tomorrow.
But it works for me very well. When walking, my legs is significantly lighter and I can walk a little bit quicker. I can not see any side effects till now, but sometimes a very slight insomnia.
Also Fampyra helps me walking in the heat, otherwise I have a serious problems. I am now SPMS.
Comment
-
Originally posted by PeterX View PostI have been taking it for about one year. Fampyra is expensive for me, because in my country is Fampyra covered by insurance. My neuro recommended me just to try it.
But it works for me very well. When walking, my legs is significantly lighter and I can walk a little bit quicker. I can not see any side effects till now, but sometimes a very slight insomnia.
Also Fampyra helps me walking in the heat, otherwise I have a serious problems. I am now SPMS.
Comment
-
Originally posted by gubbins View PostActually lucky woman - lol!
I know it is a fifty, fifty success rate. So consider myself fortunate at this point. Just hope that it might continue.
Kim
Comment
-
Fampyra
Did wonder if that was the case. Makes sense, it's not like it is the magic bullet we would all like.
At the moment things have got better in the last 2 weeks.
In week 3 now and will be speaking with Biogen nurse at the end of this week. So will see if they are okay for me to stay on it!
KimGubbins
Comment
Comment