Hello all, I have yet to be diagnosed with MS but it is suspected. A MRI that I had in 04/17 (for a check up for my NF1) showed 2 brain lesions that I did not have in the previous brain scan I had. My neuro surgeon who monitors the schwanoma at my c2-c3 saw my scans and said she thought it was MS. I kind of blew it off b/c I felt fine and didn't think any thing of it. My scans also go to Sloan Kettering as they also montior my schwanoma they also called and said be sure to have a follow up scan because you didnt have those brain lesions in your previous scan. Well I blew that off too. In October 2017 I started feeling real yucky. Pins & needles/tingles in legs, feet and my left arm. EXTREME fatigue a heavy pressure on my chest occasional tingly face, dizzy sun up to sun down.
So I went to my PCP in December after realizing I didn't just have a virus or something. She said lets set you up with a nuerologist ,as it's not what the nuerosurgeon does. I saw him in Jan '18 and had a new MRI that showed yet another lesion (3rd one) Since then I've done a bunch of differnet process of elminiation tests and appt's. I requested a B12 serum test it was low 256 but not devistatingly so. After a month of taking Methyl sublingual B12 my number is 562 I would say I have a pinch more energy but not myself still.
I have always been fit and active (running 5k's kayayaking 20+ miles on a Saturday and such) I have an appt. Jun 20th with the nuerologist he says if the last tests I had (stress echo, ekg) were inconclusive he would start me on Copaxone. I really want to feel better but dont want to take this DMD if MS isn't what I have. Am I wrong to insist on a lumbar puncture before starting any drug? Am I right that can give a more conclusive answer. ANY INFO/INPUT WELCOME.
39 years old...want to be the more normal me by 40 LOL
So I went to my PCP in December after realizing I didn't just have a virus or something. She said lets set you up with a nuerologist ,as it's not what the nuerosurgeon does. I saw him in Jan '18 and had a new MRI that showed yet another lesion (3rd one) Since then I've done a bunch of differnet process of elminiation tests and appt's. I requested a B12 serum test it was low 256 but not devistatingly so. After a month of taking Methyl sublingual B12 my number is 562 I would say I have a pinch more energy but not myself still.
I have always been fit and active (running 5k's kayayaking 20+ miles on a Saturday and such) I have an appt. Jun 20th with the nuerologist he says if the last tests I had (stress echo, ekg) were inconclusive he would start me on Copaxone. I really want to feel better but dont want to take this DMD if MS isn't what I have. Am I wrong to insist on a lumbar puncture before starting any drug? Am I right that can give a more conclusive answer. ANY INFO/INPUT WELCOME.
39 years old...want to be the more normal me by 40 LOL
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