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Hi all. Mild RRMS for 13 yrs 🤞

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    Hi all. Mild RRMS for 13 yrs 🤞

    Hi everyone,

    I am 52, married, two grown children.

    Dx nov 2005 after initial Sx of pins & needles in my feet. I was building an ikea bed for my daughter on a hot Labor Day weekend and when I was done, noticed pins & needles in my feet. Never fully went away. Fortunately diagnosed within 2 months by the great experienced neurologist my primary recommended...the MRIs sealed it.

    Rebif nov 2005.

    Plegridy nov 2015.

    No changes in my symptoms all along. MRIs all along have been basically the same (lesions in brain but not active)

    I now go to an MS specialist at an MS clinic since my original Neuro retired. Currently considering Ocrevus.

    Thanks for reading!

    #2
    Great news, let's hope it continues another 13! Question for you, why if you are stable are you changing medications? No judgement just curious as I'm on an older med Copaxone and have been relatively stable for 13 years also.

    My MS specialist said no changing as long as status quo and he even mentioned we might consider stopping medication in the future since I have been stable. That thought freaked me out and I have no intention not to be on something at least as long as I'm working.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

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      #3
      Originally posted by MisterMan View Post
      Hi everyone,

      I am 52, married, two grown children.

      Dx nov 2005 after initial Sx of pins & needles in my feet. I was building an ikea bed for my daughter on a hot Labor Day weekend and when I was done, noticed pins & needles in my feet. Never fully went away. Fortunately diagnosed within 2 months by the great experienced neurologist my primary recommended...the MRIs sealed it.

      Rebif nov 2005.

      Plegridy nov 2015.

      No changes in my symptoms all along. MRIs all along have been basically the same (lesions in brain but not active)

      I now go to an MS specialist at an MS clinic since my original Neuro retired. Currently considering Ocrevus.

      Thanks for reading!
      Hi MisterMan ~ Welcome!

      Looking forward to more of your posts letting us know what you decide, and also how you are doing.

      Good luck on your decision, whatever that may be.

      Take Care
      PPMS for 26 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

      Comment


        #4
        Originally posted by Jules A View Post
        Great news, let's hope it continues another 13! Question for you, why if you are stable are you changing medications? No judgement just curious as I'm on an older med Copaxone and have been relatively stable for 13 years also.

        My MS specialist said no changing as long as status quo and he even mentioned we might consider stopping medication in the future since I have been stable. That thought freaked me out and I have no intention not to be on something at least as long as I'm working.
        Me too...my MS specialist was that way too until Ocrevus came along. For me, the choice is driven by quality of life and efficacy. Plegridy side effects every 2 weeks, which for me includes 48+ hrs of flu-like symptoms/malaise, blues, And injection site reactions. So I have to decide between cost/benefit of the two DMTs.

        Right now I am leaning toward the switch as Ocrevus seems better for me overall than Plegridy.

        Comment


          #5
          Originally posted by KoKo View Post
          Hi MisterMan ~ Welcome!

          Looking forward to more of your posts letting us know what you decide, and also how you are doing.

          Good luck on your decision, whatever that may be.

          Take Care
          Thnaks, KoKo! I’m on my own path, but we’re all in this together...

          Comment


            #6
            Originally posted by MisterMan View Post
            I’m on my own path, but we’re all in this together...
            Well said, MisterMan.

            Take Care
            PPMS for 26 years (dx 1998)
            ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

            Comment

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