Hi everyone,
New to the site. Diagnosed RRMS in 2005, pins & needles in my feet have been the only symptom I’ve had. Rebif for years, then switched to Plegridy when it came out. No new symptoms and stable MRIs. I’m 52, run & exercise a few times a week and have worked at the same company for years. I feel very fortunate to have what so far seems to be a mild MS.
I mostly tolerate the interferon side effects though my Neuro has suggested if they are bothersome enough I could switch to Ocrevus. I nearly did in December though was concerned by the relative newness compared to interferon. I kind of felt like “let’s not rock the boat,” and the person who was going to sign me up for Ocrevus mentioned that (at the time) there were 4 reported deaths post infusion that may have been comorbidity but not known. I haven’t found any info on these reports, but it cooled me off on switching to Ocrevus.
Since then I have been reading people’s experiences here and with my next Neuro visit coming up this month, I am encouraged and again tempted to switch. Infusion every 6 mo’s seems like a no-brainer compared to a shot every 2 weeks followed by 48+ hrs flu-like symptoms, some nausea, & blues. I also saw a report of study results that showed Ocrevus efficacy was better compared to Rebif (I assume Plegridy would show similar results).
So that is what I’m grappling with...do I switch to Ocrevus now, or continue tolerating the interferon?
Interested to know this community’s perspective on this.
Thanks for reading
New to the site. Diagnosed RRMS in 2005, pins & needles in my feet have been the only symptom I’ve had. Rebif for years, then switched to Plegridy when it came out. No new symptoms and stable MRIs. I’m 52, run & exercise a few times a week and have worked at the same company for years. I feel very fortunate to have what so far seems to be a mild MS.
I mostly tolerate the interferon side effects though my Neuro has suggested if they are bothersome enough I could switch to Ocrevus. I nearly did in December though was concerned by the relative newness compared to interferon. I kind of felt like “let’s not rock the boat,” and the person who was going to sign me up for Ocrevus mentioned that (at the time) there were 4 reported deaths post infusion that may have been comorbidity but not known. I haven’t found any info on these reports, but it cooled me off on switching to Ocrevus.
Since then I have been reading people’s experiences here and with my next Neuro visit coming up this month, I am encouraged and again tempted to switch. Infusion every 6 mo’s seems like a no-brainer compared to a shot every 2 weeks followed by 48+ hrs flu-like symptoms, some nausea, & blues. I also saw a report of study results that showed Ocrevus efficacy was better compared to Rebif (I assume Plegridy would show similar results).
So that is what I’m grappling with...do I switch to Ocrevus now, or continue tolerating the interferon?
Interested to know this community’s perspective on this.
Thanks for reading
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