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    New here and looking for some experienced thoughts and opinions

    I know that no one here can diagnose but I'm looking for some opinions. I have a Dr appt tom and am hoping to find answers soon.

    I have been experiencing some symptoms this past year and they seem to be getting worse.

    From tingling and numbness in my face an extremities to vision problems. Every time I stand I feel like passing out, heat makes everything worse, I had heart attack like symptoms Saturday but er said all my tests were text book perfect. I am tired all the time, and weak. The littlest things land me trying to catch my breath. Past couple of days my vision would go blurry for a few hours at a time, and today my vision seemed to be pulsating. As it pulsated dark splotches covered my vision alongside yellow circles and was almost as if the walls were breathing.

    I have also found I have now started stuttering and jumbling all my words. My toenails were also blue and my feet were ice cube for 2 whole days this past weekend. I find that my tgought process and understanding is in slow motiin as well. are just a few of my symptoms and it is very worrisome. Sorry for my post being all over the place my husband's co workers wife was diagnosed with ms 21 years ago and brought it to my attention. Any opinions or advice would be greatly appreciated.

    #2
    Originally posted by Fire504fighter View Post
    I know that no one here can diagnose but I'm looking for some opinions. I have a Dr appt tom and am hoping to find answers soon.

    I have been experiencing some symptoms this past year and they seem to be getting worse.

    From tingling and numbness in my face an extremities to vision problems. Every time I stand I feel like passing out, heat makes everything worse, I had heart attack like symptoms Saturday but er said all my tests were text book perfect. I am tired all the time, and weak. The littlest things land me trying to catch my breath. Past couple of days my vision would go blurry for a few hours at a time, and today my vision seemed to be pulsating. As it pulsated dark splotches covered my vision alongside yellow circles and was almost as if the walls were breathing.

    I have also found I have now started stuttering and jumbling all my words. My toenails were also blue and my feet were ice cube for 2 whole days this past weekend. I find that my tgought process and understanding is in slow motiin as well. are just a few of my symptoms and it is very worrisome. Sorry for my post being all over the place my husband's co workers wife was diagnosed with ms 21 years ago and brought it to my attention. Any opinions or advice would be greatly appreciated.
    Hi Fire504fighter and welcome

    Sorry to learn that you are experiencing so many symptoms. It's probably very worrisome to you, wondering what is going on with your body.

    The only advice I have for now would be to document all of your symptoms and also write down when they appear, how often, how long they last, etc., and take the document with you to your appointment.

    I did that for my first neuro appointment and he told me that it was very helpful, and he appreciated it.

    Also, document any questions you have. Sometimes we think of questions we wanted to ask while driving home from the doctor appointment.

    If questions come up while you are there, don't be afraid to ask the doctor, at that time.

    Good luck tomorrow. Let us know how it goes.

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      Originally posted by KoKo View Post
      Hi Fire504fighter and welcome

      Sorry to learn that you are experiencing so many symptoms. It's probably very worrisome to you, wondering what is going on with your body.

      The only advice I have for now would be to document all of your symptoms and also write down when they appear, how often, how long they last, etc., and take the document with you to your appointment.

      I did that for my first neuro appointment and he told me that it was very helpful, and he appreciated it.

      Also, document any questions you have. Sometimes we think of questions we wanted to ask while driving home from the doctor appointment.

      If questions come up while you are there, don't be afraid to ask the doctor, at that time.

      Good luck tomorrow. Let us know how it goes.

      Take Care
      Thank you so much! I'll be sure to update!

      Comment


        #4
        Welcome Fire504fighter!

        In addition to the good advice from KoKo, I might add to bring a friend or husband along with you. I know that I was overwhelmed at my first neuro visit and having a note taker with me made for less stress. I would have forgotten half of what was said! And if this neuro dismisses everything you are concerned with, (it happened to me), don't be afraid to get a 2nd opinion.

        I hope all goes well and take care!
        1st sx '89 Dx '99 w/RRMS - SP since 2010
        Administrator Message Boards/Moderator

        Comment


          #5
          Originally posted by KoKo View Post
          Hi Fire504fighter and welcome

          Sorry to learn that you are experiencing so many symptoms. It's probably very worrisome to you, wondering what is going on with your body.

          The only advice I have for now would be to document all of your symptoms and also write down when they appear, how often, how long they last, etc., and take the document with you to your appointment.

          I did that for my first neuro appointment and he told me that it was very helpful, and he appreciated it.

          Also, document any questions you have. Sometimes we think of questions we wanted to ask while driving home from the doctor appointment.

          If questions come up while you are there, don't be afraid to ask the doctor, at that time.

          Good luck tomorrow. Let us know how it goes.

          Take Care
          So update. My Dr (gp) is convinced it is stress and anxiety but gave me image orders for an MRI on Tues and sent me to a retina specialist who is also convinced it is all anxiety. He said if it is msand I'm showing signs there will for sure be lesions by now. So if the mri comes back negative there is no way it's MS. Could all my symptoms in fact be brought on by anxiety ????

          Comment


            #6
            Originally posted by Fire504fighter View Post
            So update. My Dr (gp) is convinced it is stress and anxiety but gave me image orders for an MRI on Tues and sent me to a retina specialist who is also convinced it is all anxiety. He said if it is msand I'm showing signs there will for sure be lesions by now. So if the mri comes back negative there is no way it's MS. Could all my symptoms in fact be brought on by anxiety ????
            Fire504fighter ~

            Thanks for the update.

            Anxiety can bring on various symptoms, including those that you have mentioned.

            Are you being treated for the anxiety?
            PPMS for 26 years (dx 1998)
            ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

            Comment


              #7
              Originally posted by Fire504fighter View Post
              ... So if the mri comes back negative there is no way it's MS. Could all my symptoms in fact be brought on by anxiety ????
              What I often say about MS is that, since it happens in the brain, and the brain controls everything, anything could be MS. But, everything isn't necessarily MS, even if we have it. It's just a balance of finding out what is and what isn't, managing the MS when it is, and managing and treating other symptoms when it is not.

              In other words, I don't know the answer to your question. Your doctor will need to help you to figure that out. I wish that I could be more helpful.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment

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