I’ve been looking around this site for a while now, looking for answers, but everyone’s story is different. A bit about me...... I’ll try to keep it short.
Oct 17 I experienced pain and blurry vision in my left eye. I went to my doctor expecting to get some magic eye drops, or something to fix my eye. Boy was I wrong. I was imeadiatly sent to an ophthalmologist. After a few hours of testing, I was referred for a brain MRI. At this stage I had no idea what they were looking for.
Fast forward a couple of weeks. I received a call from the ophthalmologist, he informed me that I had optic neuritis and that I’d been referred to a neurologist for iv steroid treatment. I had no clue what that meant, or what was going on, as all the big words and medical terminology made no sense to me.
A few days later I received a phone call from my local hospitals MS nurse.... that’s when the penny dropped!!! MS, why is an MS nurse calling me? I went in to a tail spin of shock I think. The next day I started a 3 day course 1000 mg IV steroids.
That was only the start. A few days later, I had intense tingling and numbness down my left side. After looking at other symptoms I realised I had bad fatigue for a few months prior. And slight tingling but I robbed it off. The numbness and tingling lasted a week. It didn’t let up it was so intense and frustrating.
I now have intermittent fatigue where I feel like my body is heavy. Memory and thinking issues. I forget what I was going to say or why I went to a certain place. I also think my temperature gauge is broken. I don’t feel heat or sweat like other people. It’s weird, everyone is hot, sweaty and complaining of being hot. I just don’t feel it. Not sure if that’s even a symptom, or if it’s relevent.
My brain MRI showed the optic neuritis, 1 lesion, 5 other white matter T2 hypersensities ( whatever that is) my spine MRI was clear. This all happened from October to January. One of the neurologist in my team said she thought I should be put on treatment, then the head neurologist opted to waitand see.
So here I am I’ve had follow up scans and I’m waiting to be seen tomorrow to find out if there has been any changes in my scans. If I will be put in treatment or diagnosed. Or if I’ll be in the watch and wait category. All I can say is it’s a very stressful place to be..... I don’t really have any questions I just needed to vent somewhere that maybe I could get some useful insight. 😊
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Oct 17 I experienced pain and blurry vision in my left eye. I went to my doctor expecting to get some magic eye drops, or something to fix my eye. Boy was I wrong. I was imeadiatly sent to an ophthalmologist. After a few hours of testing, I was referred for a brain MRI. At this stage I had no idea what they were looking for.
Fast forward a couple of weeks. I received a call from the ophthalmologist, he informed me that I had optic neuritis and that I’d been referred to a neurologist for iv steroid treatment. I had no clue what that meant, or what was going on, as all the big words and medical terminology made no sense to me.
A few days later I received a phone call from my local hospitals MS nurse.... that’s when the penny dropped!!! MS, why is an MS nurse calling me? I went in to a tail spin of shock I think. The next day I started a 3 day course 1000 mg IV steroids.
That was only the start. A few days later, I had intense tingling and numbness down my left side. After looking at other symptoms I realised I had bad fatigue for a few months prior. And slight tingling but I robbed it off. The numbness and tingling lasted a week. It didn’t let up it was so intense and frustrating.
I now have intermittent fatigue where I feel like my body is heavy. Memory and thinking issues. I forget what I was going to say or why I went to a certain place. I also think my temperature gauge is broken. I don’t feel heat or sweat like other people. It’s weird, everyone is hot, sweaty and complaining of being hot. I just don’t feel it. Not sure if that’s even a symptom, or if it’s relevent.
My brain MRI showed the optic neuritis, 1 lesion, 5 other white matter T2 hypersensities ( whatever that is) my spine MRI was clear. This all happened from October to January. One of the neurologist in my team said she thought I should be put on treatment, then the head neurologist opted to waitand see.
So here I am I’ve had follow up scans and I’m waiting to be seen tomorrow to find out if there has been any changes in my scans. If I will be put in treatment or diagnosed. Or if I’ll be in the watch and wait category. All I can say is it’s a very stressful place to be..... I don’t really have any questions I just needed to vent somewhere that maybe I could get some useful insight. 😊
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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