So here I am looking for friends, strength and maybe a few virtual shoulders to cry on!
I have been diagnosed with R/R for over a year and a half, they are leaning to PP now. I have lots of lesions in the brain with some "dead" spots, and a few on my spine C2-C6 areas. I have Lupus too, and have fought that for over 18 years now. I also have a long list of other health problems mostly auto-immune. I woke up one day with a dead arm, numb, paralyzed, and couldn't feel a thing - thinking I had a stroke, I was admitted into the hospital, 3 days later I had a firm dx of MS.
I am on Rituxan so it can treat both the MS and Lupus, along with about 20 other pills just to keep me functioning like a zombie..lol
Since my diagnosis I have; been homeless, ended my marriage of 21 years, left my job, filed for disability (still fighting for) raising my daughter on my own, and now I am loosing my legs to constant spasticity.
My family is over 3K miles away - and I don't have friends who hung around after the dx - nobody could handle it. I stay in my area because of the world renowned doctors at the Cleveland Clinic..
My symptoms are long, painful and has given more to handle that Lupus ever did...
I wonder why on earth I am still here? LOL
My name is Nikki!
I have been diagnosed with R/R for over a year and a half, they are leaning to PP now. I have lots of lesions in the brain with some "dead" spots, and a few on my spine C2-C6 areas. I have Lupus too, and have fought that for over 18 years now. I also have a long list of other health problems mostly auto-immune. I woke up one day with a dead arm, numb, paralyzed, and couldn't feel a thing - thinking I had a stroke, I was admitted into the hospital, 3 days later I had a firm dx of MS.
I am on Rituxan so it can treat both the MS and Lupus, along with about 20 other pills just to keep me functioning like a zombie..lol
Since my diagnosis I have; been homeless, ended my marriage of 21 years, left my job, filed for disability (still fighting for) raising my daughter on my own, and now I am loosing my legs to constant spasticity.
My family is over 3K miles away - and I don't have friends who hung around after the dx - nobody could handle it. I stay in my area because of the world renowned doctors at the Cleveland Clinic..
My symptoms are long, painful and has given more to handle that Lupus ever did...
I wonder why on earth I am still here? LOL
My name is Nikki!
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