Hi everyone,
Long story short, I feel like MS has robbed me of my self-identity… I am only 30, living back with my parents, am essentially (and by definition too I suppose) a quadriplegic because I have minimal use of my arms or legs anymore, and I just do not know who I am really anymore…
Before the huge spiral down to isolation in a power wheelchair, I was in grad school in a PhD program, had traveled the world, and was happy with my life and where it was going. But now, I sit at home doing nothing more than watching TV or reading the random sci-fi novel on my Kindle, and the most dreaded question I get asked at neighborhood parties (that my parents drag me to) is "so what do you do?"
So I guess my big question to all of you is how do you answer that question? I am working with vocational rehab but when I showed them my resume they just say "wow, so can you find a job and maybe we can help you from there?" I do not know what to do or who I am anymore, and this just stinks!
I feel like I have been physically tossed back to "Ground Zero" and I am not sure how to move forward… Any suggestions?
Thanks,
– Joe
Long story short, I feel like MS has robbed me of my self-identity… I am only 30, living back with my parents, am essentially (and by definition too I suppose) a quadriplegic because I have minimal use of my arms or legs anymore, and I just do not know who I am really anymore…
Before the huge spiral down to isolation in a power wheelchair, I was in grad school in a PhD program, had traveled the world, and was happy with my life and where it was going. But now, I sit at home doing nothing more than watching TV or reading the random sci-fi novel on my Kindle, and the most dreaded question I get asked at neighborhood parties (that my parents drag me to) is "so what do you do?"
So I guess my big question to all of you is how do you answer that question? I am working with vocational rehab but when I showed them my resume they just say "wow, so can you find a job and maybe we can help you from there?" I do not know what to do or who I am anymore, and this just stinks!
I feel like I have been physically tossed back to "Ground Zero" and I am not sure how to move forward… Any suggestions?
Thanks,
– Joe
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