Hello I was just wondering if any body else with primary progressive MS has taken that newer drug Ocrelizumab. And if so what were your observations? I’m going through the process now for screening and was just curious. Thanks.
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Thanks pb909. Ive been reading and watching those posts and threads since they started but I just thought that maybe PPMS ers might check this foram every now and then. It’s not very active here that’s for sure. I know I’m only in the 10% group so understandably.It was one agains't 2.5million toughest one we ever fought.
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Problems speaking
Yes I know we with ppms are the minority but at least we are here now : ) I also have a benign slow growing brain tumor which is inoperable due to the ms. You can't operate on a brain with ms unless it's life threatening and it isn't, it just isn't helping. I went to the NIH in 2011 for a clinical trial on a drug for ppms but it didn't make past stage 2. Sigh. BTW, I was dx'd in 2005 at Barrow Neurological in Phoenix. Anyway, the topic is talking. Have you ever been slurring so bad (and not even realize it) that ppl not only can't understand you but think you're drunk?? At 6 am? I always wanted to say, "Who says wine is just for dinner?" lol Then I just think I could make such a jerk out of you right now but it's not worth the time or the effort. I felt the same about the rude comments regarding my handicap plate which stopped with the sticker that says you can have my handicap spot if you take my ms too. I got it from cafe express. Positive attitude is everything. I'm so glad I found others with PPMS. Have a blessed day!!
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Hello animaluver. We were both dx’d the same year. I did not know about brain surgery and MS. Hopefully both your MS and tumour stablize. That’s a lot for one plate. I don’t have any trouble talking although they say I’m a slow talker. I get quite hoarse when over fatigued. Good luck on your journey I think I’m going to try Ocrevus see if it helps any. I could use a little. Have to try something.
Take care.It was one agains't 2.5million toughest one we ever fought.
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Originally posted by oceanpride View PostHello animaluver. We were both dx’d the same year. I did not know about brain surgery and MS. Hopefully both your MS and tumour stablize. That’s a lot for one plate. I don’t have any trouble talking although they say I’m a slow talker. I get quite hoarse when over fatigued. Good luck on your journey I think I’m going to try Ocrevus see if it helps any. I could use a little. Have to try something.
Take care.
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Treatment
Originally posted by oceanpride View PostHello I was just wondering if any body else with primary progressive MS has taken that newer drug Ocrelizumab. And if so what were your observations? I’m going through the process now for screening and was just curious. Thanks.
my 2nd singles shot tomorrow and 4 weeks wait for Ocruvus. I will keep up on this area of the site.
thanks to everyone here who sees the glass 1/2 full.
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