Another year...
I saw my post from March of 2018, and it made me sad. I've just used another of dwindling years to learn how to live with this disease. Anyone who thinks it easy, just envision difficulties with things like trips to the porcelain altar in the middle of the night and such as that. Finally after all this time, I get the feeling that I've got it figured out. First, and most important, there is no middle of night. Just another interruption of sleep. Now just roll with the punches, they will not stop, but if they do it may well be a bad sign. Getting everyday activities of like these have been accomplishments I've done by myself. Because most people who say they would like to help with them have no clue. It is assumed that I already have done it.
Going forward, it is another learning experience that no one can really help me with, since they automatically assume that I've got it under control. This is how do I continue functioning while being completely run down all the time. Get out the rear view mirror and see that I have done this, successfully for a long time.
Now, today we can interject this coronavirus debacle. I've done some of this, expressed my feelings about things and got suspended from twitter for it. One account; I have two, so no problem. I can still spew anytime I want to there. But, just in time to coincide with spring time weather, when I should be out there moving around, here comes micromanaging governamental types saying "stay safe, stay home". Absolutely the last thing I needed. Oh, and be sure to wear your mask. I refuse to wear a mask. I am confident that I have the antibodies, I believe that I have not had the flu since 1981, which is when I had mono which spawned MS in my case. Now, how could I prove this?
So I press on, with the goal of getting mobile. All of this virus crap represents just another in a long line of hurdles that I have to clear. And it's cost a considerable amount of time but I'm still here. It is well advertised that "MS keeps people from moving". I'm gonna be the poster child for getting over the hurdles. Keep moving, it may not happen overnight but make it happen. And learn things along the way too.
Maybe I sound positive here, and many friends have called me a dreamer because of this. It does not hurt to dream. Only to wake up and find that it was only a dream. I don't sleep much, and that may be a good thing after all.
Dave Hall
I saw my post from March of 2018, and it made me sad. I've just used another of dwindling years to learn how to live with this disease. Anyone who thinks it easy, just envision difficulties with things like trips to the porcelain altar in the middle of the night and such as that. Finally after all this time, I get the feeling that I've got it figured out. First, and most important, there is no middle of night. Just another interruption of sleep. Now just roll with the punches, they will not stop, but if they do it may well be a bad sign. Getting everyday activities of like these have been accomplishments I've done by myself. Because most people who say they would like to help with them have no clue. It is assumed that I already have done it.
Going forward, it is another learning experience that no one can really help me with, since they automatically assume that I've got it under control. This is how do I continue functioning while being completely run down all the time. Get out the rear view mirror and see that I have done this, successfully for a long time.
Now, today we can interject this coronavirus debacle. I've done some of this, expressed my feelings about things and got suspended from twitter for it. One account; I have two, so no problem. I can still spew anytime I want to there. But, just in time to coincide with spring time weather, when I should be out there moving around, here comes micromanaging governamental types saying "stay safe, stay home". Absolutely the last thing I needed. Oh, and be sure to wear your mask. I refuse to wear a mask. I am confident that I have the antibodies, I believe that I have not had the flu since 1981, which is when I had mono which spawned MS in my case. Now, how could I prove this?
So I press on, with the goal of getting mobile. All of this virus crap represents just another in a long line of hurdles that I have to clear. And it's cost a considerable amount of time but I'm still here. It is well advertised that "MS keeps people from moving". I'm gonna be the poster child for getting over the hurdles. Keep moving, it may not happen overnight but make it happen. And learn things along the way too.
Maybe I sound positive here, and many friends have called me a dreamer because of this. It does not hurt to dream. Only to wake up and find that it was only a dream. I don't sleep much, and that may be a good thing after all.
Dave Hall
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