Anyone on this dmt ? My neurologist suggested it and on net its mostly positive but i am afraid of pml,what are the odds? My dr says no cases in ms but still i am very worried
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Originally posted by Medina89 View PostAnyone on this dmt ? My neurologist suggested it and on net its mostly positive but i am afraid of pml,what are the odds? My dr says no cases in ms but still i am very worried
I wish you well...
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Originally posted by Marco View PostI have been on Rituximab going on 2 years and doing well. It's an anti-cd20 that is quite similar to ocrelizumab (Ocervus) in action. Since there have been no reported cases of PML for MS patients on rituximab your chances are probably considered nil.
I wish you well...
But there have been cases of pml with other diseases i read?
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Originally posted by Medina89 View PostThank you
But there have been cases of pml with other diseases i read?
People with other diseases get a lot more rituximab than we do putting them at greater risk.
Only you can decide what risk(s) make sense to you. I am jcv+ and get a quarterly CBC to monitor my blood counts. That doesn't rule out all risks, but for me the benefits outweigh the risks.
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Originally posted by Medina89 View PostWhat dose do you get? i think my neuro said 500 mg will be enough ,but i do not remember that detail
Starting out
Day 1 - 500 ml
Day 14 - 500 ml
Followed by
500 ml every 6 months
I wish you well...
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Originally posted by Marco View PostI will answer your question, but please do not use my experience to form your decision. As individuals, we all respond differently to medications and have unique circumstances.
Starting out
Day 1 - 500 ml
Day 14 - 500 ml
Followed by
500 ml every 6 months
I wish you well...
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