Hello Everyone,
I have been taking Copaxone since 2013 with no reactions. Before Copaxone I tried various other medications with relapses. It seems Copaxone is the only one that works for me. Unfortunately, about 3 months ago I begin to get, what felt like, very bad reactions after the shot. I became flushed, my chest was tight, I had trouble breathing and pain soon after the injection (I don’t use the gun). I stopped taking the shots on my own because I became so scared. I went into denial thinking running and healthy eating would prevent relapse. It didn’t, I have new brain and spine lesions and will begin IV steroids today.
I talked to my neuro and he he said that we need to discontinue Copaxone—(the only thing that’s worked for me). He is suggesting a monthly transfusion called Natilizumab (from my basic understanding) kills my immune system. I’ve worked in healthcare my whole grown life and I don’t think it will be possible anymore if I change to this.
Does anyone know of a way way I could stay on Copaxone? Is there a way to stop these reactions? I take the 40s 3 times. Will the 20’s not give the same reaction?
I’m really scared and I feel like this is the best place to ask people who understand. It seemed everyone was surprised that I was having reactions, but I’ve read about here..so it’s real.
I have been taking Copaxone since 2013 with no reactions. Before Copaxone I tried various other medications with relapses. It seems Copaxone is the only one that works for me. Unfortunately, about 3 months ago I begin to get, what felt like, very bad reactions after the shot. I became flushed, my chest was tight, I had trouble breathing and pain soon after the injection (I don’t use the gun). I stopped taking the shots on my own because I became so scared. I went into denial thinking running and healthy eating would prevent relapse. It didn’t, I have new brain and spine lesions and will begin IV steroids today.
I talked to my neuro and he he said that we need to discontinue Copaxone—(the only thing that’s worked for me). He is suggesting a monthly transfusion called Natilizumab (from my basic understanding) kills my immune system. I’ve worked in healthcare my whole grown life and I don’t think it will be possible anymore if I change to this.
Does anyone know of a way way I could stay on Copaxone? Is there a way to stop these reactions? I take the 40s 3 times. Will the 20’s not give the same reaction?
I’m really scared and I feel like this is the best place to ask people who understand. It seemed everyone was surprised that I was having reactions, but I’ve read about here..so it’s real.
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