Hello all! I’m very new to this and have so many questions. I’ll try to be concise, but I’d appreciate ANY advice or guidance at this time.
My leg went numb a little over a month ago. I just woke up with a numb leg. Several days later, the opposite foot went numb. I’ve had an ultrasound, lots of labs, MRI of lower back (all normal), CT of brain (which showed mild cerebellar tonsillar ectopia) but they said that it was normal, then finally an MRI of my T-spine revealed a lesion. Neuro said it was most likely Transverse Myelitis and I took five days of IVSM. He also ordered a brain MRI and lumbar puncture. Brain MRI was read by two different radiologists and their opinions differed a little— one said 4 active lesions, the other said 3 total (two inactive lesions and one active). The CSF study showed 2 oligoclonal bands present. However, the doc said the CSF was inconclusive because there are usually 3 bands present for MS diagnosis. Everything I’ve read says two.
Im so confused. If this isn’t MS, what else would cause the bands and the brain lesions?
My symptoms are the same, if not a bit worse. I’m truly exhausted. I have an appointment next month with Cleveland Clinic, even though it’s about 7 hours away.
Thanks for reading! I’d appreciate any advice.
My leg went numb a little over a month ago. I just woke up with a numb leg. Several days later, the opposite foot went numb. I’ve had an ultrasound, lots of labs, MRI of lower back (all normal), CT of brain (which showed mild cerebellar tonsillar ectopia) but they said that it was normal, then finally an MRI of my T-spine revealed a lesion. Neuro said it was most likely Transverse Myelitis and I took five days of IVSM. He also ordered a brain MRI and lumbar puncture. Brain MRI was read by two different radiologists and their opinions differed a little— one said 4 active lesions, the other said 3 total (two inactive lesions and one active). The CSF study showed 2 oligoclonal bands present. However, the doc said the CSF was inconclusive because there are usually 3 bands present for MS diagnosis. Everything I’ve read says two.
Im so confused. If this isn’t MS, what else would cause the bands and the brain lesions?
My symptoms are the same, if not a bit worse. I’m truly exhausted. I have an appointment next month with Cleveland Clinic, even though it’s about 7 hours away.
Thanks for reading! I’d appreciate any advice.
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