Hi All
I am back. As y'all know, I have had a issue with my pump flipping. The past 2 refills went fine. My next pump refill was to be Feb 27. I didn't make it.
At work on Feb 1, I started getting full body itchiness. After I got home, the spasms started. The next morning I did go to TGH per Dr Abel. Dr Abel was doing clinic at USF, across town. She did see me and we did a bollus dose of liquid baclofen. It did calm things down for awhile, but I knew it would be short lived. She went back to her clinic. Everyone was watching me..LOL. I even had 1 dr stay with me until Dr Abel got back. By that time, 8pm, it was me, the dr and the housekeepers..lol.
I was then admitted through the emergency room, on a Friday night. I finally got to a room in emergency around 10 pm. Then a room move to the 9th floor neurosurgery around 1:30 am.
That was day 1....I could write for days on my adventure. The following 10 days involved trying to find out what was wrong. Because of me coming in Friday night, we just tried to make me comfortable until Monday. Over the days, my dose was increased 3 times. We went from 119 to 170. We also did x-rays to see how the catheter was. Dr Abel did see a little kink and also thought it could have a micro leak.
While all this was going on, I was lucky to not be tethered to the bed. I had my own little corner in the room. I was up and about. I also had a great view of Harbour Island from my room....LOL
As the week went on, we tried to do a dye test on Wednesday morning. That didn't work. They got the needle in to the port but couldn't get any fluid out.
On to plan C, Friday morning we replaced my catheter. The old catheter was 19 years old. The surgery went well. My spasms are now back to my baseline. The itching has also gone away.
I am dealing with some headaches, which is normal.
I came home sunday afternoon. I am walking just fine. I will probably be out of work until we take out the staples. That will happen feb 20.
I knew we were going to have to deal with the catheter, sometime before my pump is replaced in 3 years. I actually was holding on to time just in case. I am going to use it, but no problems. In June, I get another 4 weeks of vacation...Yippee!!
Take Care, Bob
I am back. As y'all know, I have had a issue with my pump flipping. The past 2 refills went fine. My next pump refill was to be Feb 27. I didn't make it.
At work on Feb 1, I started getting full body itchiness. After I got home, the spasms started. The next morning I did go to TGH per Dr Abel. Dr Abel was doing clinic at USF, across town. She did see me and we did a bollus dose of liquid baclofen. It did calm things down for awhile, but I knew it would be short lived. She went back to her clinic. Everyone was watching me..LOL. I even had 1 dr stay with me until Dr Abel got back. By that time, 8pm, it was me, the dr and the housekeepers..lol.
I was then admitted through the emergency room, on a Friday night. I finally got to a room in emergency around 10 pm. Then a room move to the 9th floor neurosurgery around 1:30 am.
That was day 1....I could write for days on my adventure. The following 10 days involved trying to find out what was wrong. Because of me coming in Friday night, we just tried to make me comfortable until Monday. Over the days, my dose was increased 3 times. We went from 119 to 170. We also did x-rays to see how the catheter was. Dr Abel did see a little kink and also thought it could have a micro leak.
While all this was going on, I was lucky to not be tethered to the bed. I had my own little corner in the room. I was up and about. I also had a great view of Harbour Island from my room....LOL
As the week went on, we tried to do a dye test on Wednesday morning. That didn't work. They got the needle in to the port but couldn't get any fluid out.
On to plan C, Friday morning we replaced my catheter. The old catheter was 19 years old. The surgery went well. My spasms are now back to my baseline. The itching has also gone away.
I am dealing with some headaches, which is normal.
I came home sunday afternoon. I am walking just fine. I will probably be out of work until we take out the staples. That will happen feb 20.
I knew we were going to have to deal with the catheter, sometime before my pump is replaced in 3 years. I actually was holding on to time just in case. I am going to use it, but no problems. In June, I get another 4 weeks of vacation...Yippee!!
Take Care, Bob
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