Just had my full dose infusion @ 6 months. So far I feel good, still doing the 2 hour observation.
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Ocrevus @ 6 monrhs
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Neuro visit after my 6 mo. infusion
Since starting ocrevus, my balance is so much better! I'm walking around
the house without any cane at all. (Not outside the house though).
So we went to my follow up appointment after my 6 mo. infusion and an MRI. I was so
excited to show her how my balance was more stable, and I was able to walk outside using
a regular cane, and not my quad cane.
The first thing she says is, "How are you feeling?" And she had this concerned
look on her face. I'm all happy and tell her I'm feeling quite good.
Then she turns the computer screen around to show us my MRI results.
I got a new lesion! And not like a little speck, a pretty big one!
I just slumped in my chair, and looked at my husband. We both said, "What? How is this....?"
I dunno-I was bummed, but there is nothing to be done about it now. I go for my
next MRI in July and get labs done around the last week in June. Then I will
go to see my neuro again to see the results of that MRI, a few weeks before my
next scheduled infusion. If there are more lesions, we have to make some
changes. I don't even know what I would switch to if I had to switch.
I still feel good-so it doesn't make any sense!
I've looked around online, and I haven't seen any posts or topics about patients where
Ocrevus didn't help. I'll just keep on keepin' on, because what else can I do?Dx 11/09
Aubagio since 09/15
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That's great news about your bal. improving and I'm sorry you have a new lesion and I hope you don't have to stop ocrevus.
I've had my 6mo but haven't had a mri accept before I started. I haven't had a relapse but I haven't seen any of my sx's improving.
I wish you all the best.God Bless Us All
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Thank you Temagami and REG53. I hope you start noticing a change
in your symptoms soon REG53!
I did have a MRI before starting Ocrevus, so we did have something to compare it to.
It's a bummer, but like I said, I FEEL good. So I better enjoy it while it lasts
Take care ^.^Dx 11/09
Aubagio since 09/15
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