Ampyra and leg weakness

[pballer76]

I have been taking ampyra for about 2 years.
My left leg has been getting weaker and my balance is getting worse. I find myself furniture surfing a lot.
This started about 6 months ago.

Well I stopped taking ampyra 3 days ago. Now my legs seem to be moving slower but I am a lot more stable. I am able to walk without looking for something to grab on to.

I think I will continue to not take ampyra for a week and see what happens.

Has anyone else experienced leg balance and weakness issues while taking ampyra for over two years?

[headrift]

Kind of the opposite, really. I've been on Ampyra for a few to several years, and I can definitely tell when I miss a dose or two. I hope you can keep up your walking with no med.

[jennyver]

Kind of the opposite, really. I've been on Ampyra for a few to several years, and I can definitely tell when I miss a dose or two. I hope you can keep up your walking with no med.

I agree. Amypra is the only med that I take that I definitely notice an immediate difference when I miss a dose. I've had insurance errors in the past which have significantly delayed my Ampyra refills (I've had to go as much as 4 weeks without...!) and the decline is not only noticeable, but pretty depressing. I NEED my Ampyra.

[pipmaxjas66]

I just stopped my Ampyra. I have been taking it for years but since it is going Generic they have discontinued funding so I along with a lot of other people are messed up.

I really feel the difference. I was so weak.

I have a baclofen pump implanted so I'm hoping we can get it adjusted to get my legs back where they were before I started this drug.

I am still walking, tho.