Hi everyone,
I'm hoping that maybe there will be someone who has know what I'm talking about and can somehow help me. I'm 31 year old male and I've lost central vision in my right eye over 3 months ago. I've got centrocecal scotoma and I can't read even one letter from the opthalmic board. My peripheral vision is OK. The loss of vision was quite acute, but month after the beginning the loss has been bigger and remains at this level up to today.
I used to have 2 similar episodes in the past, 5 years ago and 1 year ago, which the first one lasted for 1 month, second one for 7 months and afterwards I had a spontaneous recovery and my vision went back to perfect. Anyway, the vision loss was less significant that it is now. During these episodes I observed that my vision got worse during excercises / heat.
Here's a summary of various tests I've had in the last 3 months since the vision loss has started:
• Basic optical examination: OK, discs of both eyes are normal, everything looks normal
• Colors vision: OK, normal in general, but with the sick eye I see blue colors as more vivid
• Fluorescein Angiography: OK
• Optical Coherent Tomography (Aug, Sep, Oct, Nov): OK, same results even compared with 2016.
• Vision field test: Right eye - Outside normal limits, centrocecal scotoma; Left eye - OK
• Brain MRI: no demyelination, OK (results from 2016 and now)
• Eyes MRI (nerves and sockets): no demyelination, OK
• Spine MRI: no demyelination, OK
• Solu-Medrol i.v. for 5 days: no answer to treatment, no recovery at all
• Lime disease: negative
• Toxoplasma: negative
• Cerebrospinal fluid: oligoclonal bands type II found, overall parameteres OK
• Doppler USG of neck arteries: OK
• TSH, Cholesterol, glucose in blood, blood morphology, urine: OK
• Neurological examination: OK
• B12, Folic acid levels: OK
• EKG: OK
• Visual evoked potentials: right eye - bad, there's a delay; left eye - borderline/OK
One doctor said that I should do genetic tests to exclude Leber's neuropathy. The other doctor said that in her opinion it is not Leber's neuropathy but something else related to the optic nerve or brain. It is like neurologists send me to opthomalogists and the other way round.
I take a lot of supplements (Q10, Vit C, A, E, D3, K2, etc...) but no effect. I'm starting to lose hope of vision recovery. Is there anyone who can share some similar experiences or give me some advice?
I'm hoping that maybe there will be someone who has know what I'm talking about and can somehow help me. I'm 31 year old male and I've lost central vision in my right eye over 3 months ago. I've got centrocecal scotoma and I can't read even one letter from the opthalmic board. My peripheral vision is OK. The loss of vision was quite acute, but month after the beginning the loss has been bigger and remains at this level up to today.
I used to have 2 similar episodes in the past, 5 years ago and 1 year ago, which the first one lasted for 1 month, second one for 7 months and afterwards I had a spontaneous recovery and my vision went back to perfect. Anyway, the vision loss was less significant that it is now. During these episodes I observed that my vision got worse during excercises / heat.
Here's a summary of various tests I've had in the last 3 months since the vision loss has started:
• Basic optical examination: OK, discs of both eyes are normal, everything looks normal
• Colors vision: OK, normal in general, but with the sick eye I see blue colors as more vivid
• Fluorescein Angiography: OK
• Optical Coherent Tomography (Aug, Sep, Oct, Nov): OK, same results even compared with 2016.
• Vision field test: Right eye - Outside normal limits, centrocecal scotoma; Left eye - OK
• Brain MRI: no demyelination, OK (results from 2016 and now)
• Eyes MRI (nerves and sockets): no demyelination, OK
• Spine MRI: no demyelination, OK
• Solu-Medrol i.v. for 5 days: no answer to treatment, no recovery at all
• Lime disease: negative
• Toxoplasma: negative
• Cerebrospinal fluid: oligoclonal bands type II found, overall parameteres OK
• Doppler USG of neck arteries: OK
• TSH, Cholesterol, glucose in blood, blood morphology, urine: OK
• Neurological examination: OK
• B12, Folic acid levels: OK
• EKG: OK
• Visual evoked potentials: right eye - bad, there's a delay; left eye - borderline/OK
One doctor said that I should do genetic tests to exclude Leber's neuropathy. The other doctor said that in her opinion it is not Leber's neuropathy but something else related to the optic nerve or brain. It is like neurologists send me to opthomalogists and the other way round.
I take a lot of supplements (Q10, Vit C, A, E, D3, K2, etc...) but no effect. I'm starting to lose hope of vision recovery. Is there anyone who can share some similar experiences or give me some advice?
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