Hello All~
It's my first post here. I’ve put a bit about who I am on my profile page. But about my MS road, which began years before I was diagnosed. Because I have struggled with depression, my loss of energy was attributed to that. I kept saying I don’t feel depressed but my fatigue depresses me. I had tingling on my legs but always forgot to mention it because it was so omnipresent, I only mentioned my fatigue. When I finally mentioned it my doctor just told me to see a neurologist. I told a friend about the tingling and she said it sounded like MS to her because she had RRMS.
I finally saw the neurologist and told him my balance was off along with the tingling and fatigue and after an MRI and puncture, he said I too had RRMS.
After a few disagreements with him, I saw another local neurologist in Lake Katrine-a section of Kingston, NY and when I asked him what a remission was, which I never had, he suggested I go to the MS Center in Albany, NY. That was the best advice!
The doctor there agreed with doctor 2, that I had PPMS. My symptoms have increased, along with new ones but I have no new lesions. He showed me my MRIs and spent a lot of time with me. He was shocked that I only had an MRI of my head.
So...to wrap this up, he will follow me for six months and then a full MRI and we’ll take it from there. Of course if things get worse, I will call him.
I hope you’re not all bored to tears... but if you were, you would have stopped reading by now. ;-)
Nice to meet you all.
It's my first post here. I’ve put a bit about who I am on my profile page. But about my MS road, which began years before I was diagnosed. Because I have struggled with depression, my loss of energy was attributed to that. I kept saying I don’t feel depressed but my fatigue depresses me. I had tingling on my legs but always forgot to mention it because it was so omnipresent, I only mentioned my fatigue. When I finally mentioned it my doctor just told me to see a neurologist. I told a friend about the tingling and she said it sounded like MS to her because she had RRMS.
I finally saw the neurologist and told him my balance was off along with the tingling and fatigue and after an MRI and puncture, he said I too had RRMS.
After a few disagreements with him, I saw another local neurologist in Lake Katrine-a section of Kingston, NY and when I asked him what a remission was, which I never had, he suggested I go to the MS Center in Albany, NY. That was the best advice!
The doctor there agreed with doctor 2, that I had PPMS. My symptoms have increased, along with new ones but I have no new lesions. He showed me my MRIs and spent a lot of time with me. He was shocked that I only had an MRI of my head.
So...to wrap this up, he will follow me for six months and then a full MRI and we’ll take it from there. Of course if things get worse, I will call him.
I hope you’re not all bored to tears... but if you were, you would have stopped reading by now. ;-)
Nice to meet you all.
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