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MS Hug - not the kind of hugs I enjoy

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    MS Hug - not the kind of hugs I enjoy

    I'm dealing with a lot of MS hugs for a couple of months now. I already take Baclofen & Lyrica but my hugs are very uncomfortable, at times painful. Sometimes it even hurts to breathe. A warm shower sounds like a good idea and provides temporary relief but I'm heat sensitive so it makes matters worse. Does anyone have any suggestions? I hate to call my specialist for such a minor issue... Thanks in advance.
    Possible MS 1993, RRMS, Dx 2007, SPMS 2013. Avonex - Oct '07 - Jul '12, Gilenya - Sept '12 to May '13, Tecfidera - June '13 to present. You see things as they are and you ask why..I dream of things that never were and I ask 'Why Not?!'

    #2
    Sorry to hear they are so bad. I currently take Carbamazepine (aka Tegretol) for mine (100 mg twice a day) and while it helps mostly, I do get breakthrough ones. (I also take 300 mg of gapabentin twice a day). The only thing that helps me is a warm bath, because it relaxes me, which in turn helps to relax those nerve impulses. But yes, the problem with the heat is an issue, but warm (not super hot) baths have not yet been a problem for me. I would definitely talk to your specialist about them. It is NOT a minor thing, I don't think. I was hesitant to bring them up with my neurologist but when I did he was like OH, here this is perfect for that (meaning, carbamazepine is widely considered the drug of choice and works really well and is well tolerated). Good luck!

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      #3
      Curious1- I had the same thing

      Hello, are used to have the same problem but I didn’t collect the MS hug, I called the brace a fact because it felt like a mid evil metallic brace was strapped around my rib cage just at the brawl line. It would widen all the way to my bellybutton. Two things you need to be aware of, bladder infections with MS or rather with neurogenic bladder‘s are very different then the fecal type of accidental ladder infection. I had Infections repeatedly and never knew I had them. It was sort of a fermenting of my bladder not fully releasing. So make sure that you don’t have a bladder infection.

      I also know that in my case a very large lesion in my T spine they seem to link to the brace affect I was having. In fact I complained about the sensation before they ultimately did the MRI on my spine and found an active lesions which was a relapse for me because I had never had that before. I would talk to your neurologist about the two things I said above and see if those are called so in your case as well. Best of luck on conquering your symptoms.

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