Looking for ppl my age

[Ant1981]

Hi I'm Anthony and 6 weeks diagnosed with a brain stem lesion that won't give it up (1)

im 36 almost 37 in January 2018

just want to meet others of all ages really and hear your stories from initial diagnosis and diagnosis flares over your life with ms and how you deal with it with meds, therapists or any other strategies.


thnks

[lukeduke]

Hi Anthony I'm Lucas. Welcome to MSWorld. I do not get on here as much as I used to. I am a 37 year old who was diagnosed in December 2006. It was right before Christmas. The doctors were saying at first that I had a stroke. I started doing the Rebif inject. I did those just over five years.

I have been on Tysabri since December 2012. I have had any trouble with the msi from a few months after starting Tysabri up until a few months ago. Which that was more of one of those pseudo-flares. I worked in the IT field from 2005 until last year when I was fired then diagnosed with narcolepsy.

I eventually found another job. It was driving twice.as far to make half the money. I quit that one and started a new career in January. I had to give that up in August. Tried again for Social Security Disability. Then I kept looking for a job.

I just started last week at a car dealership. I hope they put me in something besides sales. I cannot stand and.walk all day. That would hinder the sales. Which this is almost as far as the job I had that I quit at the end of last year. This job will work out though. If I have to do sales I am going to be the best I can be and.prove those doubters wrong.

Hope you do well with MS. I can tell you from experience that it does not make a good Christmas present. Even if it is an early one.

[lukeduke]

And sorry about that last post. I rambled on and didn't break it into paragraphs. Maybe the moderators will. Thank you.

[Ant1981]

Hi

Hi Anthony I'm Lucas. Welcome to MSWorld. I do not get on here as much as I used to. I am a 37 year old who was diagnosed in December 2006. It was right before Christmas. The doctors were saying at first that I had a stroke. I started doing the Rebif inject. I did those just over five years.

I have been on Tysabri since December 2012. I have had any trouble with the msi from a few months after starting Tysabri up until a few months ago. Which that was more of one of those pseudo-flares. I worked in the IT field from 2005 until last year when I was fired then diagnosed with narcolepsy.

I eventually found another job. It was driving twice.as far to make half the money. I quit that one and started a new career in January. I had to give that up in August. Tried again for Social Security Disability. Then I kept looking for a job.

I just started last week at a car dealership. I hope they put me in something besides sales. I cannot stand and.walk all day. That would hinder the sales. Which this is almost as far as the job I had that I quit at the end of last year. This job will work out though. If I have to do sales I am going to be the best I can be and.prove those doubters wrong.

Hope you do well with MS. I can tell you from experience that it does not make a good Christmas present. Even if it is an early one.

Hi lucas, nice to meet you. You were diagnosed at 26 if my math is correct. You started with rebif ? Cause it's been An option presented to me. Tysabri seems scary to me. Why the switch ? I don't know
which DMD to choose and not sure what will work. Any tips or advice?

[lukeduke]

I chose Rebif initially due to less shots than betaseron. My mother also has MS so I had had experience with betaseron. Copaxone was an every day injection at the time.
I switched to Tysabri because I developed neutralizing antibodies to the Rebif. Tysabri still scares me. I switched doctors then too. I was going to a doctor four hours away then. I started the Tysabri. I love the Tysabri but it still scares me. I will continue as long as I can on it.

[Ant1981]

Seems more effective

I chose Rebif initially due to less shots than betaseron. My mother also has MS so I had had experience with betaseron. Copaxone was an every day injection at the time.
I switched to Tysabri because I developed neutralizing antibodies to the Rebif. Tysabri still scares me. I switched doctors then too. I was going to a doctor four hours away then. I started the Tysabri. I love the Tysabri but it still scares me. I will continue as long as I can on it.

it seems tysabri is effective up to 70% that seems nice but will start me on the first line med thonking rebif.

did you ever have bad side effects from rebif or tysabri?

[lukeduke]

I haven't had any side effects from the Tysabri. Other than the needle shaped hole it puts in my arm. Just kidding. The holes go away.
On the Rebif if I forgot to take Aleve, ibuprofen, or Tylenol I would have the worst hangover ever. I did have blood work that was a little off on the liver enzymes but I still drank a little beer now and again. As I mentioned I chose Rebif initially due to less shots.
I was always a baby when it came to needles. So I chose the fewest injections with the smallest needles.

[lukeduke]

So have you decided which DMD to try. I know anlady that went from a wheelchair to walking. She has walked in the last two MS Walks.

[Ant1981]

DMD

My neuro suggested tecfidera. See how I react and see that it hopefully works for me. Something good has to happen as the last 2 months have been hell for me in my current relapse which is relentless.

[Mamabug]

Hi I'm Anthony and 6 weeks diagnosed with a brain stem lesion that won't give it up (1)

im 36 almost 37 in January 2018

just want to meet others of all ages really and hear your stories from initial diagnosis and diagnosis flares over your life with ms and how you deal with it with meds, therapists or any other strategies.


thnks

Hi. I'm not your age, but I used to be. I'm 55; my MS began at age 39 and took almost 2 years to be diagnosed. It started with a bang -- stroke-like symptoms in the middle of the night, an ambulance trip to the ER, severe disabling dizziness, PT and OT for months, a 2 week trip to Mayo Clinic (who was unable to dx me), 7 MRI's and many other tests in the first two years, etc.

Following dx, I used Betaseron for about 5 years. Was not very effective for me -- still had 1 or 2 MS flares every year, severe enough that I was often hospitalized 1-3 weeks each time. Switched from a general neurologist to an MS Specialist. She put me on Copaxone; it has managed my MS much better. I also use some supplements.

I went on SSDI disability in at age 46. I volunteer as a moderator here at MSWorld, and at various places in the community. However, over time, I have less energy, less stamina and less mobility and I volunteer less than I used to. I've become somewhat of a couch potato and Netflix, Hulu and MSNBC addict.