Hello!
New here. Found this forum whilst awaiting CSF lab results. Just confirmed, and DX yesterday (8/31) with CIS, high risk of developing CDMS.
My story:
A few months ago I started noticing I had no feeling in my skin, a much reduced sensation, mostly on my trunk and legs. Then I developed what I was later told is the Lhermittes. I also later developed the MS hug on my left side. PCP did blood work and referred to Neurologist. Neuro concerned about spinal cord involvement based on clinical symptoms, sent for C-spine MRI. Came back showing a lesion at c2/c3, sent me for the brain MRI. That came back showing periventricular white matter, so she went for the LP. (All 3 of those happened in a week. I was astounded). LP results she said were going to take 6 weeks so come back end of September.
In the meantime, after most came back, I scheduled a second opinion look with another Neurologist at large research center (Georgetown). He confirmed CIS, saying while the lesions were not showing as active on the MRIs, the MRIs came at least a month or more after onset of symptoms and that he believes the spinal cord one is the cause of my current symptoms. (symptoms started early June, MRI was in August) Therefore, it is all one clinical "event" and not the multiple in the time dissemination of the DX criteria for full blown MS.
So here I am. I live in the Washington DC metro area, 42 year old woman
Oh, and my brother has had MS for 10 years.
New here. Found this forum whilst awaiting CSF lab results. Just confirmed, and DX yesterday (8/31) with CIS, high risk of developing CDMS.
My story:
A few months ago I started noticing I had no feeling in my skin, a much reduced sensation, mostly on my trunk and legs. Then I developed what I was later told is the Lhermittes. I also later developed the MS hug on my left side. PCP did blood work and referred to Neurologist. Neuro concerned about spinal cord involvement based on clinical symptoms, sent for C-spine MRI. Came back showing a lesion at c2/c3, sent me for the brain MRI. That came back showing periventricular white matter, so she went for the LP. (All 3 of those happened in a week. I was astounded). LP results she said were going to take 6 weeks so come back end of September.
In the meantime, after most came back, I scheduled a second opinion look with another Neurologist at large research center (Georgetown). He confirmed CIS, saying while the lesions were not showing as active on the MRIs, the MRIs came at least a month or more after onset of symptoms and that he believes the spinal cord one is the cause of my current symptoms. (symptoms started early June, MRI was in August) Therefore, it is all one clinical "event" and not the multiple in the time dissemination of the DX criteria for full blown MS.
So here I am. I live in the Washington DC metro area, 42 year old woman
Oh, and my brother has had MS for 10 years.
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