It's been awhile since I was here. Apologies if this has been posted in the past, but I did a search and couldn't find anything here. I had a flare up at the beginning of August - ended up going to my PCP, since I couldn't get into see our local MS specialist for almost a month.
He gave me 10 days of oral steroids that did nothing. I traveled to Cleveland, OH last week (4 hr. trip - I used to live there) where I saw my neurologist/physiatrist there. They prescribed received three days of Solumedrol IV and have been prescribed an initial dose of Baclofen (10 mg/tid) for spasticity - which has become severe in my right arm and leg. (Spasticity is a new experience for me, it sucks!) The docs did tell me that I've progressed to SPMS (dx'd in 1995 with RRMS initially treated with Betaseron and then Copaxone without too much success. (When I moved to Cleveland, they placed me on Tysabri for 5 years, which I think slowed down the progression, until I became JCV positive). After day 3, on the steroids, I feel somewhat improved - fighting the urge to eat everything in site and am a bit "puffy" and feeling a bit mean/aggressive/cranky. Know these are side effects, have had in the past.
However, I'm feeling "wiped" out - slept all day yesterday and not feeling much better from being rather sleepy today - when I was on the steroids I had difficulty sleeping and felt sick to my stomach - those are clearing up, but am surprised that I'm not "feeling better". It's been a couple of years since I've received these, so just asking if anyone else has had this type of experience with them, or how much time I should give them before I start feeling "better".
I know that everyone responds differently, but would appreciate input from others that have been through this. Just didn't want to contact my doc's if I just need to be patient for a bit longer....
Thanks much!
Sparticle
He gave me 10 days of oral steroids that did nothing. I traveled to Cleveland, OH last week (4 hr. trip - I used to live there) where I saw my neurologist/physiatrist there. They prescribed received three days of Solumedrol IV and have been prescribed an initial dose of Baclofen (10 mg/tid) for spasticity - which has become severe in my right arm and leg. (Spasticity is a new experience for me, it sucks!) The docs did tell me that I've progressed to SPMS (dx'd in 1995 with RRMS initially treated with Betaseron and then Copaxone without too much success. (When I moved to Cleveland, they placed me on Tysabri for 5 years, which I think slowed down the progression, until I became JCV positive). After day 3, on the steroids, I feel somewhat improved - fighting the urge to eat everything in site and am a bit "puffy" and feeling a bit mean/aggressive/cranky. Know these are side effects, have had in the past.
However, I'm feeling "wiped" out - slept all day yesterday and not feeling much better from being rather sleepy today - when I was on the steroids I had difficulty sleeping and felt sick to my stomach - those are clearing up, but am surprised that I'm not "feeling better". It's been a couple of years since I've received these, so just asking if anyone else has had this type of experience with them, or how much time I should give them before I start feeling "better".
I know that everyone responds differently, but would appreciate input from others that have been through this. Just didn't want to contact my doc's if I just need to be patient for a bit longer....
Thanks much!
Sparticle
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