Hello all. New to forum, and kind of new to "possible" MS. I only say possible because my doctor told me it is a possibility, along with other autoimmune diseases. Before I continue I must warn you that that this will be a very LONG and DETAILED post. So, if you care to read it feel free to, if not, thanks for at least making it this far. I will list my stats first, then my symptoms in chronological order, and then I will list my tests and results thus far.
I have an appointment with a Neurologist in 2 months (crazy booked where I am at). This is why I am making an attempt to gain some knowledge from individuals who may have experience with my symptoms, and or who just want to give an opinion or advice. Thanks in advance to all who reply.
Age : 33
Race : White (mainly English and Irish)
Sex : Male
Height/Weight : 6' (182CM) and 225 Lbs. (102KG) I did weigh 200 Lbs (was at the gym regularly) until 3 months ago when I started to rapidly decline, and just couldn't seem to get the energy to continue.
Bi-Lateral Carpal Tunnel (Severe in right, mild/severe in left)
Asthma (64% FEVI)
Piriformis Syndrome (Right Side)
Bone Spurring and Slight Disc Degeneration in Spine
Peroneal Nerve Damage (Foot Drop) in left leg.
Mild Sleep Apnea
Symptoms Starting 2 years ago
Symptoms Starting 1 years ago
Symptoms starting 6 months ago
Symptoms starting 3 months ago
* Denotes symptoms that have gotten worse since first noticing
Many symptoms seem to be stages. Will have them in episodes, then go away, then come back with some degree of worsening.
Physical Tests
Blood/Urine Tests
Still waiting on the following : HLA Single ABC Antigen test
Bold Highlights tests that came back with a positive result
Okay, that pretty much sums everything up. So...if anybody made it to the end, THANKS! I will be patiently waiting for anybody's response.
I have an appointment with a Neurologist in 2 months (crazy booked where I am at). This is why I am making an attempt to gain some knowledge from individuals who may have experience with my symptoms, and or who just want to give an opinion or advice. Thanks in advance to all who reply.
Age : 33
Race : White (mainly English and Irish)
Sex : Male
Height/Weight : 6' (182CM) and 225 Lbs. (102KG) I did weigh 200 Lbs (was at the gym regularly) until 3 months ago when I started to rapidly decline, and just couldn't seem to get the energy to continue.
Bi-Lateral Carpal Tunnel (Severe in right, mild/severe in left)
Asthma (64% FEVI)
Piriformis Syndrome (Right Side)
Bone Spurring and Slight Disc Degeneration in Spine
Peroneal Nerve Damage (Foot Drop) in left leg.
Mild Sleep Apnea
Symptoms Starting 2 years ago
- Ringing in ear, with head pain; sometimes accompanied with dizziness *
- Excessive Snoring; used to never snore, now will start before i even fully sleep *
- Hearing loss *
- Extreme Thirst *
Symptoms Starting 1 years ago
- Dizziness and then a drained feeling after; sometimes accompanied with lights
- Vision Issues (blurriness, depth perception) *
- Muscle Spasms and Cramps (Spasms primarily in arms, cramps primarily in legs/feet)
- Heartburn & Acid Reflux (Primarily at night, happens in spells; have it for 2 weeks, then nothing for months)
- Facial Flushness (more so around nose and eye are; sometimes burns like rawness) *
- Occasional pain during ejaculation
- Needing to urinate more often (sometimes pain/discomfort) *
- Feeling of full bladder, but only small amounts of urine come out *
- Nail Brittleness and flattening
Symptoms starting 6 months ago
- Memory Issues (forgot how I got somewhere, what I came in room for, certain words, to swallow own spit, etc.) *
- Pain in back and hips (pretty much constant) *
- Overall feeling of tightness; like my body needs to be stretched *
- Difficulty Breathing (randomly happens; also under any exertion : stairs, walk/talk at same time) *
- Upset Stomach (Primarily in morning, usually diarrhea)*
- Feeling of restlessness (almost twitchy?) *
- Bouts of extreme itchiness (primarily legs and back) *
- Sometimes can not tell when I am done urinating *
- Body tingles (almost like small little shocks or like something crawling on me) *
- Fingertips smell horrible sometimes, even after I scrub them with soap
Symptoms starting 3 months ago
- Loss of coordination; more clumsy lately
- Sense of fogginess, especially in morning, and some in evening
- Fatigue (comes and goes; good days, bad days)
- Joint Pain (prominently in hands, feet, and hips..but occurs in all joints at random)
- Pain in hands and feet (more so in morning)
- Numbness in hands (sometimes feet)
- Tendon Pain; like when I move quickly from stationary position (Heels and Shoulders mainly)
- Muscle weakness; in arms and legs primarily
- Unusual Smells (finger nail polish, smokey incense, used cat litter)
- Excessive Sweating with a smell of ammonia sometimes; noticed by others, not me
- Hard time adjusting to light (mainly from inside to outside)
- Bleeding easily and more than usual from banging into stuff
- Inability to pop my fingers, but every other joint pops at random
- Intolerance to Heat; exhaustion, sweating, difficulty breathing
- Decreased and Increased sensitivity in feeling; can’t feel some things, others hurt bad
- Headaches; not so much frontal but in temples and in back of head
- Disorientation with heights; nausea and depth perception
* Denotes symptoms that have gotten worse since first noticing
Many symptoms seem to be stages. Will have them in episodes, then go away, then come back with some degree of worsening.
Physical Tests
- EMG Legs - Pereneal Neuropathy/Drop Foot Diagnosis
- EMG Arms - BiLateral Carpal Tunnel - Mild/Severe Left and Severe Right
- XR SI Joints - Good
- XR Spine Lumbar - Minimal levocurvature of the lumbar spine centered at L2. Hypoplastic 12th rib. Mild Multilevel disc space narrowing. Spurring through Lumbar spine.
- XR Left Hand - Mild DJD left ring distal interphalangeal joint. *Previous Injury Possibility
- XR Right Hand - Good
- Echocardiogram - Good
- ECG 12 - Lead - Incomplete right bundle branch block. Abnormal ECG - Not sure if that means the test was incomplete, so possibly nothing.
- Sleep Study - Mild Sleep Apnea
Blood/Urine Tests
- Creatine Kinase - Slightly Elevated at 268 U/L
- ANA Titer - 1:160 Homogeneous and 1:160 Speckled
- Comprehensive Metabolic Panel - Good
- Urinalysis - Good; Just cloudy
- Hemoglobin A1C - Good
- Phosphorous - Good
- Vitamin D 25 - Good
- Magnesium - Good
- Folate - Good
- B12 - Good
- Thyroid Stimulating Immunoglobulin - Good
- Thyroglobulin Antibody - Good
- Thyroid Profile (TSH and T4 Free) - Good
- Anti Microsomal Antibody - Good
- Glutamic Acid Decarboxylase - Good
- Antibodies - SM,RNP,RO,LA - Good
- Cyclic Citrullinat Peptide ABS - Good
- C-Reactive Protein, Inflammatory - Good
- Rheumatoid Factor - Good
- Mitochondrial Antibody, IgG Titer - Good
- Gamma Glutamyl Transpeptidase - Good
Still waiting on the following : HLA Single ABC Antigen test
Bold Highlights tests that came back with a positive result
Okay, that pretty much sums everything up. So...if anybody made it to the end, THANKS! I will be patiently waiting for anybody's response.
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