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    New to MS World~

    Hi, My name is Madeline, I am 47yrs old, and I was diagnosed RRMS on April 8th, 2017. At first the docs thought I'd had a stroke (right side completely numb), but after many tests, I learned it was MS. I found this site by accident, just typed in to Google, "how long will my first MS attack last?" and found you all. I could really use a community. I have two kids (17 and 12), my boyfriend moved in with us only 2 months before life went sideways. I am beyond tired, experiencing pain in right side, and still half numb. I haven't worked since my onset attack (March 2nd), and spent the first few weeks with messed up vision, hearing, and serious fatigue. Like others have mentioned here, the fatigue is so unpredictable. I'm looking at a radical dietary change to see if this helps my symptoms...I figure it couldn't hurt. I know I was going too fast through life, taking on too much and never asking for help, but I kind of wish I could've had a softer road block than MS...feels a bit too sudden. I am trying to stay grateful for all I have (loving friends and family), but sometimes I feel a little 'Why me?!' about it all. Anyhow, it's really nice to know I'm not alone. M

    #2
    Originally posted by 1201madeline View Post
    Hi, My name is Madeline, I am 47yrs old, and I was diagnosed RRMS on April 8th, 2017. At first the docs thought I'd had a stroke (right side completely numb), but after many tests, I learned it was MS. I found this site by accident, just typed in to Google, "how long will my first MS attack last?" and found you all. I could really use a community. I have two kids (17 and 12), my boyfriend moved in with us only 2 months before life went sideways. I am beyond tired, experiencing pain in right side, and still half numb. I haven't worked since my onset attack (March 2nd), and spent the first few weeks with messed up vision, hearing, and serious fatigue. Like others have mentioned here, the fatigue is so unpredictable. I'm looking at a radical dietary change to see if this helps my symptoms...I figure it couldn't hurt. I know I was going too fast through life, taking on too much and never asking for help, but I kind of wish I could've had a softer road block than MS...feels a bit too sudden. I am trying to stay grateful for all I have (loving friends and family), but sometimes I feel a little 'Why me?!' about it all. Anyhow, it's really nice to know I'm not alone. M
    Hi madeline

    Welcome!

    Glad you found our community. MS World is a great place for sharing info and for sharing our experiences living with MS.

    And yes, it is nice to know that we're not alone with our challenges.

    Hope you find the unique understanding from other members here.

    Take Care
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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      #3
      Hi 1201madeline, don't worry we go through the why me stage, MS hey, better then a stroke worse then a headache, I have had MS for more then 20 years and I hate to say it but if you are going to have MS now is the time to have it, there is a lot of research going on and a lot of disease modifying drugs out there that can be really helpful, the Number 1 thing you need to do is get a good neurologist that you can talk to, trust and have faith in him/her and be a specialist in MS.
      MS isn't the end you just have to modify you life to the new you keep your friends and family close lean on them and laugh don't let things get you down, I often have to shake myself just so I remember what I have and what I can do NOT what I haven't and can't good luck ask any questions there aren't any stupid questions or embarrassing ones Craig

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        #4
        Hi Madeline. I've had MS for 15 years, and have been a member of MS World for most of them. My "journey" with MS also started with stroke-like symptoms (my left side) and a visit to the ER. Here is the story of my first flare: http://creativecenter.msworld.org/li...f-in-the-night

        You're right; you are not alone. You are also not the only person here who wishes for a softer road block. Best wishes to you as you learn to cope with having a chronic illness.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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