I finished my first round of Lemtrada, at the end of January 2017, and I'm feeling pretty good ! I haven't regained any of my mobility, and I didn't expect to regain any . I am wondering if there are any plans, or strategies, to help MSers like me to recoup any of my lost functions . Any thoughts ?
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Jerry - I'm so glad to hear that you're feeling good! Here's something from the NMSS about repairing lost functions - http://www.nationalmssociety.org/Res...amaged-Tissues
Also this - http://www.medicalnewstoday.com/articles/316382.php
As one with SPMS and getting old, I'm not crossing my fingers yet. But hope something happens in my life time.1st sx '89 Dx '99 w/RRMS - SP since 2010
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Hi Jerry,
Glad your feeling better.
If your sense of wellbeing has improved , do you think your up to an increase in physical activity?
Probably start with physio t then if stamina and strength improves slowly increase exercise and get a regime suited to you going. You may be surprised how much activity you can do with decreased pain and discomfort and it helps to build muscle tone.
Good luck and all the best and keep us updated
Caroline
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Jerry,
I've had the Lemtrada second year treatment and my hope is to level out or slow-down my disability progression.
Hard to tell with all the good-days / bad-days. Really aren't any good-days only ok-days!
re: "any plans, or strategies, to help MSers like me to recoup any of my lost functions"
...I'm not aware of anything.
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Originally posted by JerryD View PostThank you, pb909! I appreciate your response. Sometimes I feel like posting on this board is a bit like shouting from Mt. Everest ! Or doing something in the ocean ! lol.
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Same here...
Hey Jerry!
Glad to to hear you're doing well. I also keep hoping that my mobility in my left leg will improve but so far it's the same/getting worse. But like you said, it may be asking a lot, probably more so in our first year. I believe you got your first round the week before me, if I'm remembering correctly??
So maybe I'll hold out some hope for a year after round 2....patience isn't my strong suit. I'm hoping we all get a positive boost from this ordeal. Take care!
StarlaDX 2005 RRMS. Did 2nd round of Lemtrada Jan 2018. DX SPMS 2019
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