Hi all-just got diagnosed on Monday-now sitting in the infusion center on day 4 of IVMP. Neuro says another round of MRI's with contrast next week then we figure out a treatment plan.
My life has been turned upside down overnight. Obviously I've had symptoms for a long time like most before diagnosis, but I always thought there would be some simple explanation. Maybe a vitamin deficiency or something.
Now that I know what it is, I'm reading a lot about MS and realize how long this has been going on and all the other things I never thought were related really are. For example, I was already scheduled for heart echo, carotid echo, and tilt table before I got the dx, and now I get it that dysautomnia is just another symptom. Who'da thunk.
Anyway, I think my wife is having more trouble with it than me. I'm 52 yo man married with two kids and three grandkids, my wife and I were just planning our bucket lists for retirement, and it seems we may have to rearrange all that. I know she is in shock, much as I still am, just wish she would talk about it.
I guess there's no prognosis type planning with this, no one seems to know how fast progression will be, if at all, but at my age and the symptom progression it appears PPMS is going to be the final Dx.
Could really use some encouragement. Thanks for listening.
My life has been turned upside down overnight. Obviously I've had symptoms for a long time like most before diagnosis, but I always thought there would be some simple explanation. Maybe a vitamin deficiency or something.
Now that I know what it is, I'm reading a lot about MS and realize how long this has been going on and all the other things I never thought were related really are. For example, I was already scheduled for heart echo, carotid echo, and tilt table before I got the dx, and now I get it that dysautomnia is just another symptom. Who'da thunk.
Anyway, I think my wife is having more trouble with it than me. I'm 52 yo man married with two kids and three grandkids, my wife and I were just planning our bucket lists for retirement, and it seems we may have to rearrange all that. I know she is in shock, much as I still am, just wish she would talk about it.
I guess there's no prognosis type planning with this, no one seems to know how fast progression will be, if at all, but at my age and the symptom progression it appears PPMS is going to be the final Dx.
Could really use some encouragement. Thanks for listening.
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