So they said I had till September to get the pump refilled, but they'd like it by August and not push the envelope so try to get it done sooner.
I had my appt. with the neurosurgeon and he said they'd get me on the schedule now, however, my kiddos and grandson are coming for a visit in May and around the 4th of July. My grandson is 1 and it would be so hard to handle stitches and a little guy who likes to crawl into your lap to get books read, etc...so we're waiting till 2nd half of July. They didn't have the surgical schedule for that this far ahead, but once it comes out for July, his surgery scheduler will put me down. I'm glad because the thought of recovery and visitors won't be an issue.
Now for some "stinky" news he brought up which I never would have thought about...ignorance is
bliss.
He mentioned that with replacement they just go in, replace the pump (they're going to have to reposition mine because of this crazy scoliosis brace I wear that right now seems to push the pump the wrong way and can cause the muscles around the pump to hurt.
So he informed me that they'd hope it'd be one belly incision deal, and that they do usually keep you over one night when they're replacing the pump. When they repositioned mine, last time, it was day surgery, but that was because we were using the same pump. I guess they want to make sure the thing is working okay.
Now for the depressing part. I have a pretty large dose I'm on 250 mcg...and he said that may be the dose I need. But to remember that even though I'm enjoyng no spasticity in my legs with the pump and doing fine with that dosage, there still may be a catheter issue, in which case you get the double whammy surgery...belly incision and back incision. Sometimes he said there's a leak in the catheter, and enough is being delivered through the catheter to keep spasticity in check, the catheter can still be leaking some of the baclofen, and so they have to do the back surgery too.
He said it was an unusual presentation, but more common that one would think.
So I'll put on my ruby slippers and tap them together three times before the surgery and say
"there's only going to be one incision...there's only going to one incision."
Either way, been there done that. I've had the double incision twice, once when it was put in and later during a revision. And I've had the single incision once during a revision...so either way,
"it is well with my soul." I'm not going to fret about something I have no control over, it is what it
is, or it will be what it will be.
Did you hear yet about a date?
I had my appt. with the neurosurgeon and he said they'd get me on the schedule now, however, my kiddos and grandson are coming for a visit in May and around the 4th of July. My grandson is 1 and it would be so hard to handle stitches and a little guy who likes to crawl into your lap to get books read, etc...so we're waiting till 2nd half of July. They didn't have the surgical schedule for that this far ahead, but once it comes out for July, his surgery scheduler will put me down. I'm glad because the thought of recovery and visitors won't be an issue.
Now for some "stinky" news he brought up which I never would have thought about...ignorance is
bliss.
He mentioned that with replacement they just go in, replace the pump (they're going to have to reposition mine because of this crazy scoliosis brace I wear that right now seems to push the pump the wrong way and can cause the muscles around the pump to hurt.
So he informed me that they'd hope it'd be one belly incision deal, and that they do usually keep you over one night when they're replacing the pump. When they repositioned mine, last time, it was day surgery, but that was because we were using the same pump. I guess they want to make sure the thing is working okay.
Now for the depressing part. I have a pretty large dose I'm on 250 mcg...and he said that may be the dose I need. But to remember that even though I'm enjoyng no spasticity in my legs with the pump and doing fine with that dosage, there still may be a catheter issue, in which case you get the double whammy surgery...belly incision and back incision. Sometimes he said there's a leak in the catheter, and enough is being delivered through the catheter to keep spasticity in check, the catheter can still be leaking some of the baclofen, and so they have to do the back surgery too.
He said it was an unusual presentation, but more common that one would think.
So I'll put on my ruby slippers and tap them together three times before the surgery and say
"there's only going to be one incision...there's only going to one incision."
Either way, been there done that. I've had the double incision twice, once when it was put in and later during a revision. And I've had the single incision once during a revision...so either way,
"it is well with my soul." I'm not going to fret about something I have no control over, it is what it
is, or it will be what it will be.
Did you hear yet about a date?
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