I've decided to give up on Tysabri. I've just read some scary articles from a little less than a year ago saying how increased risk for PML is being seen and that tests (titres) for JCV are giving false negatives.
My infusion center won't even send my blood to the certified lab for it. They insist on doing it within their system and a titre is such a wishy washy test anyway.
Plus no one at the infusion center bothered to tell me about Biogen's financial assistance program until this past February allowing me to rack up over $1k in debt in copays. So I've had to apply for financial assistance with the hospital and their application seems illegally intrusive according to my state's laws. Asking for bank statements and more.
It's been almost 2.5 years since I started Tysabri and the risk for PML seems too high now. Plus my insurance premium and my husband's premium is so high now that we won't be able to afford it next year since it will surely go way up again. As it is, after paying my husband's premium, we can't afford for him to go the doctor and his health is failing. He looks anorexic.
I've been bed bound and housebound now for 2.5 years. We do not qualify for any aid of any kind.
My infusion center won't even send my blood to the certified lab for it. They insist on doing it within their system and a titre is such a wishy washy test anyway.
Plus no one at the infusion center bothered to tell me about Biogen's financial assistance program until this past February allowing me to rack up over $1k in debt in copays. So I've had to apply for financial assistance with the hospital and their application seems illegally intrusive according to my state's laws. Asking for bank statements and more.
It's been almost 2.5 years since I started Tysabri and the risk for PML seems too high now. Plus my insurance premium and my husband's premium is so high now that we won't be able to afford it next year since it will surely go way up again. As it is, after paying my husband's premium, we can't afford for him to go the doctor and his health is failing. He looks anorexic.
I've been bed bound and housebound now for 2.5 years. We do not qualify for any aid of any kind.
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