My name is Jim. I am new to MS. I was diagnosed in January. By all current information I have Primary Progressive type. I am not new to chronic illness. I have had a disorder called Charcot-Marie-Tooth since early childhood. It is a neuromuscular disorder that has many of the same symptoms of MS. However, there were symptoms that did not fit with CMT. I have found a number of people with CMT who also have MS, although there is nothing to suggest a causal relationship. In July of this year, I began having vertigo and nystagmus. The nystagmus has stayed with me. It is only now getting better with the help of Tegretol. A neuro-opthomologist I see for the nystagmus saw plaques in my brain that made him suspect MS. A lumbar puncture confirmed it. This was overwhelming at first, but I see that the diagnosis of MS simply puts a name to the symptoms I am already having. These are symptoms the CMT could not explain.
I am married and have two children. I have been on disability for around 10 years. I thought it was the CMT, but I now believe it is a combination of the two disorders. I am a Licensed Clinical Social Worker. I look forward to learning more about MS. I would like to also learn more from people who have both MS and CMT.
I am married and have two children. I have been on disability for around 10 years. I thought it was the CMT, but I now believe it is a combination of the two disorders. I am a Licensed Clinical Social Worker. I look forward to learning more about MS. I would like to also learn more from people who have both MS and CMT.
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