I couldn't rest knowing that I haven't posted some relevant info about my Lemtrada treatment. I don't know about any other MSers but I feel the need to post some of the 'surprises' that I was unaware of prior to getting the 5 day infusion.
The routine for prepping for the infusion may not be 100% universal for every patient. This is my experience.
First, I was sent to Quest Labs for blood and urine tests, as Genzyme has a 'deal' worked out with Quest to cover the expenses of the blood labs. Second, once the patient has been accepted into the Lemtrada the program, the patient is required to get a blood and urine test every month for 4 years. Third, it is essential that the patient drink about a gallon of water, before, during and after the infusion of Lemtrada to flush out the 'dead' 'B' and 'T' cells that Lemtrada kills.
My neurologist ordered that I get a tuberculosis test. That was a test that my PCP's office completed. Fourth, after the infusion, it is recommended that the patient avoid contact with just about anything that could carry germs. The patient should wash hands frequently. Use hand sanitizer, frequently. The patient should avoid hand shakes. Avoid crowded areas like the mall, church, public meetings. The patient should avoid eating food prepared at restaurants or delivery meals.
Then there are foods to avoid like sushi, deli meats, soft cheeses, smoked salmon, hot dogs, raw sprouts, pates or meat spreads. Also inspect and wash thoroughly all raw vegetables.
I was expected to begin taking Acyclovir, Zantac and Zyrtec 3 days prior to the infusion.
The Acyclovir will be continued for about a month.
That's about all of the small details that I didn't know before the infusion. Good luck to anyone that chooses Lemtrada.
The routine for prepping for the infusion may not be 100% universal for every patient. This is my experience.
First, I was sent to Quest Labs for blood and urine tests, as Genzyme has a 'deal' worked out with Quest to cover the expenses of the blood labs. Second, once the patient has been accepted into the Lemtrada the program, the patient is required to get a blood and urine test every month for 4 years. Third, it is essential that the patient drink about a gallon of water, before, during and after the infusion of Lemtrada to flush out the 'dead' 'B' and 'T' cells that Lemtrada kills.
My neurologist ordered that I get a tuberculosis test. That was a test that my PCP's office completed. Fourth, after the infusion, it is recommended that the patient avoid contact with just about anything that could carry germs. The patient should wash hands frequently. Use hand sanitizer, frequently. The patient should avoid hand shakes. Avoid crowded areas like the mall, church, public meetings. The patient should avoid eating food prepared at restaurants or delivery meals.
Then there are foods to avoid like sushi, deli meats, soft cheeses, smoked salmon, hot dogs, raw sprouts, pates or meat spreads. Also inspect and wash thoroughly all raw vegetables.
I was expected to begin taking Acyclovir, Zantac and Zyrtec 3 days prior to the infusion.
The Acyclovir will be continued for about a month.
That's about all of the small details that I didn't know before the infusion. Good luck to anyone that chooses Lemtrada.
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