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Hi All,
last Thurs I had #112 I am infused every 56 days for approx 1 1/2 years .
Thank G-d and Tysabri I am stable!
I'm having #84 on Friday, but am still at 28 days. However due to age, I'm asking my neurologist about extended dosing at my February appointment. I switch to Medicare on Feb. 1.
I'm with you; thank G-d for Tysabri! Today I exercised in my therapy pool for an hour, removed, washed, and remade the bed, began my 2nd batch of lefsa, and made chicken soup and biscuits from scratch. I have no idea what got in to me, but I felt great!
If I end up turning positive, I know I can stay on Tysabri thanks to you!
Relative newbie at #54 and fortunate to still be JCV negative! I love seeing these posts. It is great to hear how stable some folks remain when on Tysabri, even with the extended period for dosing.
Thank you all
Ru4cats, (yes, I have one )
you busy, busy gal I am glad for you ! I do water aerobics, then play cards and sometimes go out to dinner. I am so grateful I can live my life like this. On a day I make mondel bread (for those who do not know what this is, a type of biscotti )it rather wipes me out (I make enough for 3 or 4 families) and I do not do much else but, once again, so grateful I can do this
Hi All,
last week I had #118 MRI stable, waiting still for JCV test (which the 2 b4 it were NEGATIVE) and R leg now dragging more
My biochemist son thinks that I can go between indeterminate and negative depending on how well my immune system is fighting off the virus-this makes sense to me!
Happy Thanksgiving-I have so much to be thankful for
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